Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
My feet had been bothering me for a very long time, especially when I first woke up. but within a few HOURS, they felt better, so I blew it off. In Dec., 2011, I had fallen on my shoulder, went to orthopedist, who said it was a rotator cuff injury, so I was in PT for that. I mentioned my feet issues. She ordered PT for my feet. That did not help. The PT tried all sorts of things, and told me that she thought I should see a rheumatologist. She talked to the Orthopedist, the Orthopedist agreed, and referred me to the Rheumatologist.
So, in some ways, the Rotator Cuff injury was a good thing, because it got me to a Rheumatologist faster. Rotator cuff never really improved. I have had shots. I have had PT. Now, I am having surgery in a week. Thankfully, it is my left side, and I am right handed.
As a teen, with enough NSAID's I was able to play sports. I increased my NSAID's at 18-19 but remained quite active and fit in my early 20's then had another setback in my late 20's with more limiting foot pain. Early to mid 30's foot pain became very limiting. At 34 hand pain became very limiting, requiring accommodations at work and school. At 35 everything started to fall apart, rapidly. 36 now, almost all of my joints are affected, the pain can be disabling, tendons are not so good, most exertion causes flares.
For the entire 20 years I have been prone to low-grade fevers, fatigue and malaise without realizing what the cause was. My memory started to deteriorate and we now think that was the result of profound vitamin deficiencies. Also have mild cases of type 2 diabetes, psoriasis, eczema, allergies ... heck, half the time I'm not sure if I've listed them all. In short, my immune system is an annoying PITA :)
I don't run anymore and I am careful with how I treat my joints (don't do rock climbing etc). I hate that this disease has limited me and I feel how I am aging however I do what I can when I can.
The brain fog can be so bad at times. Don't know if I'm coming or going, word recall......can be horrible. My kids were like "mom you ok?" so we had to sit them down and explain to the to remind me if they tell me something, text me reminders and if I'm talking to them and it sounds odd just go with it. lol
It's pretty much all been downhill from there.
I've learned more about my body since than I ever cared to learn previously. I've also learned more humility than I ever cared to possess previously. I take more meds than I had ever taken. It is what it is, I am different than i was and so are y'all. I think my body is more like a late sixty than a mid fifty.
Odd but my own mortality just doesn't bother me anymore. Once upon a time I wanted to live to 150 but now I think I'll pass on that one.
I was 44 when I was diagnosed. My boys had left home to go to University, take jobs, and play hockey. But my daughter was only 10. I am so thankful for her in those early years. She used to dress me, brush my hair, and take care of me. I do regret she had so much dumped on her, because my husband didn't step up to the plate till 2009, after she had left home.
But it gave her a passion to help people. She has had numerous jobs helping people, and is now a social worker. I guess that is turning a negative into a plus.
I don't know what I would have done if I had gotten RA before that. We were so incredibly busy with hockey and figure skating. We had up to 20 ice slots a week. I know after I got RA, it was hard enough just to get my daughter to figure skating, and I tried to get her to quit more than once. She eventually became a figure skating coach which she used to put herself through university. So I am glad I took her to her skating sessions.
As for brain fog - that was my first symptom! And several years before I got joint pain. I was taking a French vocabulary course with 500 words to memorize, along with definitions. When studying for the final, I literally couldn't memorize a single word. I had been an A+ student before that.
I had a bad asthma attack, and had to go on 40 mg prednisone 2 days before the exam. I looked at the words, and memorized them all and aced the test. It took me a while to put it together years later when I was working on my Master's degree and had a med failure that it was RA brain fog. I couldn't have gotten my Master's without a biologic and no brain fog. Right now, I am starting to finally see through the fog and get organized again. Not sure where the last 10 months went. Somewhere in the fog, I guess!