Rheumatoid Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...
http://www.dailystrength.org/search?q=actemra&t=discussion&community=Rheumatoid+Arthritis
On the positive side, the shot is pretty much painless.
My biggest fear is being able to drive home afterward. If I get it done at my doc's office I have a 2.5 hour drive home. If this comes about I am hoping I can have it done at the local hospital which is only a 45 minute drive.
I've read where nobody has really had any side effects right after their infusion. But it still worries me with that long drive right afterwards.
The infusion itself is painless, takes about an hour or so, once it has been set up.
Actemra has loered my inflammation markers to normal levels for the first time in almost 5 years. I have no swelling but am in a lot of pain (may or may not be from Actemra) so having extensive blood tests, MRI, CT Scan and a Nuclear Bone Scan next week to see if shows up anything. My Rheumy is puzzled about the pain when blood tests are showing huge improvement in inflammation levels.
Hugs
I now take Xeljanz in tablet form 2 times daily, and it seems to work just about as well. One of the reasons I think it helps about as much as the Actemra is that the dosage is far more even (daily) rather than the monthly infusions I got before - my first 2 1/2 to 3 weeks would be good, then I'd start flaring again in my last week or so before the next infusion). Actemra was the most effective of the four or so biologics I've tried. BTW, side effects minimal with all of my biologics - I'm one of the lucky ones.
I'd suggest looking into how the infusion process works for your doctor and factor that into your decision. In my case, the hassle of > order the meds at just the right time/draw blood monthly/schedule only on Wed morning/need to reschedule? Can't fit you in for another 3 weeks< just wasn't worth it.