Reflex Sympathetic Dystrophy Support Group
Reflex sympathetic dystrophy syndrome (RSDS), also known as complex regional pain syndrome, is a chronic condition characterized by severe pain following injury to bone and soft tissue. The most common symptom is burning pain. The patient may also experience muscle spasms, local swelling, increased sweating, softening of bones, joint tenderness or stiffness, restricted or...
I am currently receiving no treatment other than physical therapy for my RSD. I am on 400mg Zonegran daily for migraines and Fibromyalgia and take one to two 5-500mg Vicodin a day for pain unrelated RSD pain. I have been told that Zonegran is not a medication that is used to treat RSD. It doesn't act on nerve pain the same way as Neurontin and Lyrica.
I took Nerontin a long while ago and it didn't work for the condition I had. I was taking it for my Fibromyalgia. Maybe if I were were to take it for this condition it would have a different effect. When I see my doctor on the 6th of June I wlll have to really have to say I want to try a medication for my RSD. I feel I should be looking at other avenues of treatment than just physical therapy to treat this. I can't rely one just one treatment.
I should explore many options and many medications as possible before I should say I have exhausted everything and just learn how to cope with this condition as best I can.
I took Nerontin a long while ago and it didn't work for the condition I had. I was taking it for my Fibromyalgia. Maybe if I were were to take it for this condition it would have a different effect. When I see my doctor on the 6th of June I wlll have to really have to say I want to try a medication for my RSD. I feel I should be looking at other avenues of treatment than just physical therapy to treat this. I can't rely one just one treatment.
I should explore many options and many medications as possible before I should say I have exhausted everything and just learn how to cope with this condition as best I can.
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This isn't really bipolar related but there is never anyone on the parenting groups, this is the most active group I've been in.My 6yr old son has really bad seasonal allergies and they're in full force right now. He gets a terrible cough; he coughs all day and all night, making it hard for him to sleep, and his nose runs.I've tried every allergy medicine, OTC and RX, and none of them affect his...
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Is anyone here allergic to Sulfa that is currently taking Diamox? I have been diagnosed with IH now for almost 2 years. I am allergic to Sulfa drugs meaning that my throat will swell up so my Neurologist put me on Topamax. I was suffering from major loud whoosing noises and the topamax helped that but everyday I still hear those mainly between 6 - 12 pm. I am at my wits end and have not went...
MS Contin is of a category called "Slow Release Opiates" i.e. It is time release Morphine. It is delivered into your system at such a rate that you really never feel that "High" that the faster working opiates like Vicodin or Percocet give you (though, if the breakthrough pain is bad, you do need to resort to these faster ones occasionally). Like most pain meds in my experience (and in talking about drugs I can ONLY speak to my own experience), MS Contin does not remove all of the pain but certainly is successful in bringing it down to a bearable level. And because it does not make me feel "stoned" it makes it much easier to live a more normal life. I just had my doseage adjusted on Friday (which is another good thing about MS Contin: you have wide margins for dosing.) and am now taking 30mg 3 times a day..so 90 mg altogether. So far this seems to be a good fit. Incidentally, MS Contin is a very fairly priced drug. As far as side effects...always with any kind of opiate, there is constipation (pretty easy to take care of) and since I have yet to adjust to the higher dosage I am sleepier than I would like to be and my appetite is a bit off. These effects almost always pass. As always, best of luck.
Am glad to hear about the PT. I think it is just crucial. jean
And that is why you need a truly good Doctor.... Best, jean
I also have done PT and aquatic therapy. The aquatic therapy was helpful and I'm going to pursue it when the pools open up around here.
Good luck!
Pinky
Am sure others are concerned as well. If and when you are feeling up to it, please let us know how it is going with you. Blessings, Jean
and still can't tame this beast! Much Good Luck to you!