Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
TossNTurn
I got my new CoaguChek a couple months ago. The way it works is my doctor writes a prescription for the machine. The prescription includes my goal range (2.0 - 3.0) and how often I should test. Her assistant wrote the prescription for me to test once a week. If I don't test at least once a week, I fall into "non-compliance" and could get kicked out of the program.
Anyway, my doctor doesn't think I need to test weekly if my INR is steady and has tried to figure out how to change the prescription so I can check however often (two weeks, a month) she wants me too... so far this hasn't happened.
Me personally, I don't care. It is five minutes out of my life every Monday and I keep a closer eye on fluctuations in my INR. It doesn't cost me anything extra and the program sends me supplies for free.
So, I guess the question is, would you test your INR more frequently if you could? Even when your numbers have been steady?
I guess I'm inclined to feel that more frequent monitoring can't be a bad thing ... thoughts?
Anyway, my doctor doesn't think I need to test weekly if my INR is steady and has tried to figure out how to change the prescription so I can check however often (two weeks, a month) she wants me too... so far this hasn't happened.
Me personally, I don't care. It is five minutes out of my life every Monday and I keep a closer eye on fluctuations in my INR. It doesn't cost me anything extra and the program sends me supplies for free.
So, I guess the question is, would you test your INR more frequently if you could? Even when your numbers have been steady?
I guess I'm inclined to feel that more frequent monitoring can't be a bad thing ... thoughts?
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Once a week doesn't seem terrible and it's not a bad thing necessarily, but it would irk me to do so at this point in my life, now that I'm more relaxed about my INR, and I don't find a lot of value in testing that often. When my INR is unstable, even my doc doesn't usually have me test sooner than two weeks apart, unless something really nuts is going on with my INR.
In the bad old days, those $150 visits to the clinic had to be spread out every several weeks as a matter of cost containment. That cost scenario no longer applies.
As we all know, even with the most rigid of habits, INR can fluctuate and drift on its own. It is well-known that Warfarin brings a risk of bleeding incidents - about 5 percent in any given year, with about a 1 percent chance of it being fatal. With weekly testing it is possible and reasonable to catch more of those drifts over 3.0 and get something done about it immediately, instead of walking around unawares for two weeks while at worsening peril. Actual outcomes of frequent self-testing reflect the reduction in risk.
http://www.inrselftest.com/content/patients/what-is-inr
My Doctor and inr nurse do not promote this machine, but they were going to check my inr monthly or every 6 weeks, I was not happy with this, i had no control and my inr flutuates quite a bit. I paid for my own machine and my stripes, some people can get stripes on perscription but where i live you can't. Im in UK. The doctor said i would be checking it all the time, this is not the case, its a fantastic machine and I feel im in control now.
What it HAS added to is my feeling of having control over the situation and having to run my life less on the whim (and office hours) of other folks.
Plus, *trusting* that I'm in range isn't as good as *knowing* that I'm in range, in my book. I'm well aware that I'll have numbers that go up and down. But if I drop out of range, I'd rather know in one week than four. If I shoot up, I'd rather know in one week than when I start bleeding into my foot again.
Not an obsession, just healthy maintenance.
That said, I test sometimes every week, sometimes every two weeks, frankly just depends on what is going on in my life. I do a lot of bicycling so I like to keep my INR in the low 2 range. Testing a couple days before the weekend gives me assurance that if I get into a crash at 2.1, it's not as critical as being 3+. I am generally very stable at 2-2.4, so it's not a big deal.
I record the reading and move on. There's no stress involved for me, but I can see how others might obsess over it.
It can also be helpful to see how your body reacts to new foods and/or drugs for future management.
Luckily, everyone gets to do this their own way
Chris
Good luck Toss you have been so helpful to me and I wish you the best.
Hugs
Ferr