Pulmonary Embolism Support Group

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

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Wheezing

Lynnedz56
Lynnedz56
I've had good days, I've had bad days. Today started out, I thought as one of the good days. I had an appointment with my regular doctor and by the time I got home (more walking than I'm used to) I was wheezing and coughing again. Seems I take great strides forward and then 3 steps backward. I know we've talked about the pains, the shortness of breath, but did anyone else have wheezing only on exertion and that cough coming back. Again I'm only a little over 4 weeks out from this. Funny thing....the pain is not there today. Is this just one of the fun things I will experience? And the pulmonologist was not happy with 1.7. So, I've been upped to 6 mg. and recheck in 10 days. My primary doc said it's not unusual to have a hard time stabilizing you in the beginning. And she recommended what you all did. Consistency in eating. Don't buy out the store just because spinach is on sale.
TossNTurn
TossNTurn
Seriously, yeah, it is one step forward and two back for a while with PEs. Someday, it'll be two forward and one back ... and someday maybe 100 forward and none back.

But when you're only four weeks out, it doesn't take much. Everything you describe (wheezing, pain, cough) is pretty much standard.

Hang in there!
deleted_user
deleted_user
After almost two years I am still wheezing with exertion, coughing in the morning but no pain. My PEs are still in the lungs. I am a bit stronger than I was originally . Still taking it one day at a time and hanging in there.

Hugs, Cindy
Carolyn2
Carolyn2
My first visit to my doctor I was coughing. Ths was about 3 days out of the hospital I told the dr., "I'm still coughing you have to do something about this". She explained that I could cough for up to a year out. I didn't but that gives you an idea that at 4 weeks a cough is normal. I have asthma so a wheeze is not odd for me.. and It took over 2 months for my INR to get stable.
Good Luck,
Carolyn
Lynnedz56
Lynnedz56
I'm still getting used to not being able to accomplish what I want to in a day. I had this cough for the last couple of months before they found the PE and the first few days out of the hospital, the cough and the wheezing was gone. I felt great. And now it's all back. However, they did tell me last week that the clots are not blocking the airways as badly as 4 weeks ago. I'm just getting frustrated with myself. Before I knew it was a PE I was pushing myself and going even though I could hardly breathe. Now, that the doctors tell me to "take it easy", I'm finding that hard. And when I wake up and feel pretty good, I think I do too much.
rmb
rmb
Recovery is TOTALLY one step forward and two steps back for a while. Your body is trying to figure things out after such a traumatic event. And I was one of those cases where it took months to get my INR even above a 2, let alone stable. So what you're experiencing is very common.

Also, I'm four years out and still have occassional wheezing, particularly when it's cold out, or really humid.
deleted_user
deleted_user
I'm 7 months out and still get occasional wheezing, mainly because my asthma seems to have been worsened from the assault on my lungs. It has been getting better though. Keep the faith!
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