None except some hair thinning. Think any side effects experienced can vary drastically from individual to individual. I do recall when I first started warfarin having more reflux (already had acid reflux) and indigestion but that improved soon after starting warfarin,.

I was in my early 40s when I had my PE and went off the pill at that time. The weight started piling on. Think it's a combination of the hormonal changes, metabolism and having not been as active as I had been for the first few months post PE diagnosis. It got better as time went on. I would make sure you're not cutting out healthy foods simply because you're on warfarin which some people do thinking they have to avoid veg because they're now on warfarin.

My main warfarin side effects were fatigue/lack of energy and brain fog (harder to concentrate). Both improved dramatically about 3 days after stopping warfarin.

My only side effects from warfarin have been hair thinning and lack of energy, fatigue and brain fog. The lack of energy, fatigue and brain fog improved within a few weeks.

I think my hair's thinned out a bit. I was really tired at first, but now I'm ok.

On the plus side my migraines have basically gone away entirely. I was getting them a lot, and bad. To the point I could do nothing but lie in bed for a couple of hours when they were at their worst. I've had two since being diagnosed--one the night I went into the hospital with my PE, and another a couple of months later when I thought I had another.

I had terrible side effects. I didn't gain weight on warfarin, I lost a ton of weight. Mostly because my stomach was always upset. I had hair loss, I was dizzy, fatigued, muscle aches, I was cold all the time, terrible brain fog, and I'm sure there are others I'm not thinking of right now. Like edmie, my side effects resolved within about a week of coming off warfarin. If someone told me I had to be on warfarin for life, I honestly think I would fight to try one of the newer anticoagulants. I really don't think anyone (myself included) thought all my side effects were warfarin related until they all abruptly went away when I stopped taking it. My doctor was floored when she saw how much more functional I was just a couple weeks off warfarin. I guess I'm just not one of the lucky people who can tolerate meds well.

Jenner----- thank you for your report on how you felt before and after warfarin. I've read that so many times (the night and day difference) that I'm sure it's true. It would be hard to imagine that that many total strangers would exaggerate that. LOL

You wrote:
" If someone told me I had to be on warfarin for life, I honestly think I would fight to try one of the newer anticoagulants."

I'm a lifer----- and have resisted the new anti-coags (due to just one of their problems---no easy/quick way to stop bleeding).

But do we really know that the fatigue and other horrible symptoms that comes with warfarin usage will be avoided with them? (That's addressed to the gen pop here, not you, since you're off warfarin, done and dusted.)

Cave, I totally agree... no guarantee that all those symptoms would be avoided. The inability to reverse bleeding would definately scare me too, and if those side effects did exist with both meds, I would probably resort to warfarin. Given how awful I felt on warfarin, I would definately want to at least explore the options. Fingers crossed it will never come to that, but it's still something I have in the back of my mind since there is no guarantee I won't clot again. **knock on wood**

Jenner said:
" if those side effects did exist with both meds, I would probably resort to warfarin."

I would too, probably will too. I always prefer older meds because most of the warts on their noses have already shown up. And they weren't fast-tracked through the systems as quickly as some of the newer meds are.

I am on warfarin too and get headaches, upset tummy, lots of gas and seem to be constipated a lot which I never was before taking it, from what I was told the dizziness, pale skin color are not a side effect but I have read differently on sites. I will be talking to the hematologist at my 1st appointment, to go over these and maybe Coumadin might be the change for me, will see what she says. Wish I felt better taking it cause the newer drugs scare me with no easy way to stop bleeding.

My symptoms haven't been too bad. My periods were so monstrous that my gyno put in an IUD. It's too soon to say if it's working yet, but she said it should stop them. My hair has definitely thinned, but I had a lot to begin with. I've gained a little weight, but not too much yet. I've had a brain fog, too. I wouldn't say I've been any more tired. I was tired and out of breath for the first few weeks after my PE, but that went away.

My hair is falling out in big clumps. I'm pretty sure that's from Warfarin.
I am having migraines but I don't know if it's from Warfarin or being off birth control for the first time in many years.
I have gained 20 lbs in a month. I went from size 6 to size 10 in 1 month. :o(
I am tired, my body hurts all over, and my brain is foggy but I don't know if it's from the meds or having just had a heart attack and saddle Pulmonary embolism a month a go.
My period is worse for sure.
Also about the alternate drug. Yes it is known to have less side affects and less problems however.... The 1 huge downside of the new drug is that you can not undo the coagulation effects fast. On warfarin if there is an emergency (like you need surgery or are hemorrhaging) they can give you Vitamin K and coagulate your blood fast in an emergency. They can't do this on the new drug so you better hope you don't need an emergency surgery while on it.