I don't think you're crazy.

That's interesting. I wonder if the PE and being on coumadin took your focus off the other things, so that you either didn't notice them as much any more or you forgot about them. I have some chronic health issues too and I know that I become OBSESSED with the symptoms of them to the point where I fixate which amplifies them. And then if something else comes along to distract me, I don't notice them as much anymore.

I don't know. I think so much of what we think is related to the PE, DVT, warfarin, other health issues, etc is so driven by our psyches that it's hard to determine what is a clinical symptom and what is mentally or emotionally induced.

I go through spurts where I have those neurological issues too. Seriously, I thought I had MS. But then after a while, I think it occured to me that they were anxiety and stress induced.

It all gets really confusing and hard to sort out, doesn't it?

It may depend in part on what other changes came after starting treatment required for PE recovery. In my case I had to give up nightly beer-drinking, and the mild fatigue of meds along with the somewhat melancholy effect of illness and recovery put me in bed early most nights. Such clean living is advisable for nearly anyone, but it was forced to happen. Since then I have seen the blood pressure drop, and have maintained continued excellent health in all ways but one.
I would also chime in my agreement that there is nothing like a REAL health problem, with life-or-death implications, to put the minor and contrived ones into the back seat.

No Beecute your not crazy, that's weird you should mention the jumpy eyes because I have suffered from that all my life and just thought I was weird., I started suffering from Chronic Fatigue several years ago and just attributed that to my age. My mother had CMT (Charcot Marie Tooth) A neurological disorder disease since she was a small girl and it is hereditary and I always have asked if that could have any connection to any of my weirdness with my body but no one wants to make any connections. I don't think I will ever live long enough to learn any of the genetic answers to all of my questions but you never know.

I like you guys and dont want to end up upset with the folks here.
I would be happier if we just let this discussion go to the bottom of the pile
with no more responses.

I now realize that my original post did not make clear the extent of my chronic illness.
I gave up alcohol, junk food and staying up late back in my 20s because of my health.
I even made the difficult decision not to have children because of the chronic fatigue and vertigo.
It has seriously affected my life.
I was in the hospital 9 times last year for IV treatment for intractable migraine.

I know people on this here are really sweet and trying to help, but I am finding some of the responses disturbing and belittling.
I have survived two PEs (one of which was massive and bi-lateral), but that does not make my other health problems any less real, nor does it make them simply anxiety or something I was obsessed about.

If you posted, it might be worth reading what you wrote and considering how you might feel if someone wrote that to you- wrote stuff implying that you were OBSESSED with symptoms or that your illness wasnt REAL. How would you feel?

I feel sad and hurt that my on-line support group doesnt feel supportive.

What I am trying to say is that coumadin helped with my neurological symptoms.
It has been documented that coumadin helps with migraines for some.
If anyone has also lived with chronic illness, found some relief on coumadin and truly understands what I am talking about, feel free to send me a personal message rather than posting here.

Ferr, thanks for your interesting and supportive comments.

I'm sorry but I have to respond because I see you are upset with what I wrote.

I did not mean to hurt you with my comments. That was not my intent.

I have ulcerative colitis which, when not in remission, can be completely devastating,physically and emotionally, and it's extremely painful all over my body. So, I understand living with a chronic disease and all that it entails. Sometimes I, meaning ME, obsess on my symptoms where I can't focus on much else until something else snaps me out of it. I also know that I, meaning ME, have experienced anxiety which has so many physical symtoms that I, meaning ME, have a hard time sorting through it to figure out if it's the PE, the warfarin, the ulcerative colitis, the anxiety or something else. I was not suggesting you suffer from anxiety and it's all in your head. What I was suggesting is that this is all freakin' complicated and it's hard to know what is what sometimes.

So, again, I'm sorry I offended you. I'll take that into consideration when I see another post from you.

Rachelle