So they don’t think you are forming new clots, just existence of your current clot or infarction? They should be able to tell if a clot is new or chronic based on a CT. Did they do a d dimer test?

Are you still feeling anxious and what not or is that subsiding?

It can definitely take a while. The research I found said that two thirds of patients felt back to normal after two years, for the other third they still weren't back to normal. My CTs show my clots are continuing to resolve 4+ years later. It is definitely frustrating (see: my user name...) but on the up side, you will continue to improve, painfully slow as it is.

No new clots just the same one is there not dissolving or going away after 9 months I stop my thinners a few times soon as I do I get that neck shoulder blade pain , I did have the clot months before being diagnosed, I’m just feeling like will it ever go away , have any of you ever heard of Nattokinase? To dissolve blood clot ?

I haven't heard of it...

It’s a supplement and you shouldn’t take it with warfarin. I don’t think it’s scientifically proven to be as effective as warfarin on it’s own either. Be cautious. Supplements are fine, like vitamins but you really have no idea what you are taking when you take supplements.

I don’t want to dismiss your pain when you are off warfarin but do you see a connection with you anxiety increasing when you are off warfarin? I just wonder if you may be getting stressed and tense causing some of that discomfort. Warfarin prevents new clots; it doesn’t dissolve existing clots. I have to agree it can take a while for existing clots to resolve. Does a heating pad or ice help with the pain? I’m sorry you are struggling.

They took me off initially to have nose deviated septum surgery cause my pulmonologist was sure my clot resolved but I ended back at the hospital with a ct showing my clot still there in the same spot 8 months later still there and causing pain in the shoulder blade / neck , honestly I don’t have anxiety really anymore I’m in terms of my condition kinda have more of a when is this gonna end and UCLA doctor really didn’t say much and I payed for that visit holly shit exspensive as hell , I ask is it possible that it just taking longer to resolve and they just shrug there shoulders , it’s weird it’s like there little to no information on pulmonary embolism it’s like stories from others know more , I just have read that Nattokinase if you stop blood thinners and take that supplement it breaks down clots fast , I’m not worried about getting new clots cause my first one was from a trauma injury to my pelvic , I’ve tried ice and heating unfortunately no luck

I would do way more research on Nattokinase and I’d try too look at studies from legit scientific studies vs drs and scientists that are not hired by or work for the producers and proponents of the supplement. I’d say that for any supplement.

I guess I’m just curious the connection between stopping warfarin and the pain. Warfarin isn’t a pain reliever and not taking or taking it has no bearing on your existing clot. It seems even though your clot is still present it’s not going anywhere. It’s not getting bigger is it? Is it getting smaller? A couple of years after my PE/DVT, I still showed a chronic clot in my calf. It was the scaring and where the clot has adhered to my vein. I was on warfarin too. Stuff just sometimes takes a while to resolve. Did your doctors give you recommendations on the pain?