I was given Rivaroxaban first when diagnosed. First pill I took I woke up with a bloody nose second pill I had extreme headache and it only felt better after vomiting as well. I didn’t fair well on the medication. I ended up hemorrhaging from uterus and suffering diabetic acid ketoacidosis. I had to have 2 blood transfusions and was in the icu a week. I was switched to warfarin. Not everyone will have the same issues but I know how bad those headaches are it only lasted the night for me when I was vomiting they lessened but came and went.
My PE was in October 2017. Add on being diabetic and anemic to recovery. I take progesterone for 10 days at the end of my menstral cycle to stop bleeding, so far so go just the inconvenience of feeling caught in a hormaonal cycle of discontent.
I can only walk a block around the neighbourhood I’m still struggling and always exhausted, your not alone in that respect either. I was going to post something similar. Can’t seem to stand well on my leg with the DVT. It’s vein is swollen and sticks out all the way up to my thigh. Very frustrated and wondering when it gets better and you feel like you don’t have to struggle as well.

This Ian first oral medication they’ve put me on and it jus hasn’t agreed I’ve been told I’ll be on medication for life I’d rather been on my injections twice a day then feel like this! In all this I’ve had operations to remove clots on lining of my stomach n pancaries jus feel like am getting no better I never had DVT we’ll not that I know off I was admired with breathing problems and fasts heart rate! Sounds like it not having the best of times neither hunny I hope ur okay? Am here if u ever wanna chatxx

I’m 36 actually at my doctors now , I’ve been diagnosed a month now with my first PE , I’m glad I found this group cause this shit literally sucks , been having headaches and back aches from the medicine , more then anything anxiety through the roof omg fuck this , at the doctors now just found it’s in my genetics so in 2 months I’ll get a balloon stint put in so I don’t gotta take thinners for ever the clot I have now has dissolved but shit always gonna be in the back of my mind they said I can go back to hiking again so Thats a plus I’m here as well

Oh god hope ur okay? Feels like it’s never ending its 6 months n still on going I just feel like giving up most days

Hi jenni3987,
First do not give up. But if you are vomiting things that look like coffee beans that is not good. Get to a doctor asap.

Don't give up but I know the fight is tiring. I agree with CHIPS4ME. Please call or see your doctor.

Hi guys am with my consultant this morning on my way the hospital now I really appreciate yous getting back to me I just feel like am all on my own going through this so again thankyou I will keep yous posted xxx

Hi guys just left my hospital am going in on Saturday morning at 8am to have the camera down and up and they reckon the black vomit is some form of old blood but not sure n took me off my rivapaxaban n put me back on fragmin twice a day t d-dimmer is high again so having vq scan after my cameras been done Saturday xxx

Jenni3987 Please keep us posted. I had a GI Bleed and was warned what to look for as I had to have a transfusions. My prayers are with you.

Jenni this what support here for , you definitely not alone , and I’m sure everything will go well Saturday, this shit definitely know fun back n fourth back n fourth tobthe doctors I hate how the thinners make feel , good days , bad days try to people but they don’t understand literally at all you got my

Thankyou very much guys for all your support I really do appreciate it am still not very well this morning jus booked Doctor app going over to see him
Shortly am nervous about Saturday but I know this needs to be done xxxx

Take a look at my posts. None of the anticuagulants agreed with me, made me feel awful. Then I finally found one that did, Savaysa (Edoxaban)