Pulmonary Embolism Support Group

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

1,102 Members
7,473 Posts
0 Online
Lungs & Respiration
/ Pulmonary Embolism Support Group

RANT: I'm exhausted!

TossNTurn
TossNTurn
I really am exhausted, but it isn't from my PEs (for a change). Seriously, I am just completely worn out from trying to keep up with all my medical stuff. I've been at the pharmacy so many times this week I'm surprised they don't know me by name.

I've got sinus surgery in a week and a half. I'm taking a bazillion pills right now and just started a new one today. I've got sinus washes twice a day and ointment I have to put in my nose twice a day and Lovenox shots twice a day and pills twice a day. I've gotten into bed more than once this week and realized that I forgot something I needed to do.

Every time I see one doc it seems like I have to make another five phone calls as a result. The new med I got today? It'll interact with warfarin and make my INR go up. Not a problem since I'm on Lovenox right now to prepare for surgery, but it will be a problem IF I'm still taking it after surgery and my primary is trying to regulate my INR. So, another phone call tomorrow to my primary (who manages my blood) to see if that'll be an issue.

And I'm talking to my parents tonight about the surgery. They're very anti-Western medicine and I've been putting off telling them about the surgery. Surprisingly they were supportive but my mom made an off-hand comment about whether I should be having surgery with the infections in my sinuses ... something I don't know. So another phone call tomorrow to the ENT about that.

And my cardiologist called and wants me to make an appointment for January. Seriously??? I'm just trying to get through November right now. And I have to deal with my high cholesterol after surgery. And I probably should see an endocrinologist to figure out about my adrenal adenoma. And my doc wants me to come in for a full physical at some point too. And I've got another appointment in early December to see if the surgery I had in March *finally* worked.

I'm exhausted just typing it all in, never mind living through it. My health needs its own calendar and to-do list. I thought 2010 was horrid with the 80+ doctor's appointments, but it turns out that 2011 has not been much of an improvement. I can only hope that 2012 is better.

I'm TIRED.
chicago58
chicago58
oh i know the feeling i counted twenty two dr appointment for last month alone. sometimes two in one day one in one town 60 miles north and the other in another town 80 miles south of my home. i thought oh finally it is gonna calm down then i seen the pulminolagist and he lines me up with four more for nov in addition to the seven already on the books not including labs and two surgery's last month one on each eye. and this month the meeting of the minds can't seem to decide if closing the hole in my heart they found last month or leaving it alone..the more they look the more they are gonna find unfortunately not the one and only thing they were after. why i had to go on oxygen a year after the pe's.. the dr's have no idea what they are asking sometimes like when they write a prescription not covered by insurance and it is 300 a month and you spend two weeks trying to get them on the phone to change it. i asked my pcp physition if i can start saying no to these tests. the dr's half the time don't even tell us the results anyway.
my prayers are with you. i would say it will calm down after your surgery but i have learned not to count on that just be patient as you can as it is necessary to get the good end result.
deleted_user
deleted_user
Mayte, you're stronger than you give yourself credit for. You're dealing with a lot right now and are organised enough to put everything on a calendar. You're doing great.
Rest where you can and stay focused on the end result.
Take care :-)
rmb
rmb
Hey TNT, it's so hard when you're preparing for a surgery or a procedure and have other issues going on as well. It seems like there's so much to do and you're just want to deal with one thing at a time, and it's like if you have any other chronic conditions, that gets in the way too. Then this weird stuff out of left field starts happening, it makes the stress that much more palpable.

I know you're not asking for advice, but ... something that helps me when it gets this overwhelming is to try to really chunk it all down by compartmentalizing it so that it's more manageable, more simplified. Otherwise,you feel like you're drowning in all the STUFF.

I really understand what you're going through with being overwhelmed. It's not going to be like this forever so try to keep that tucked in the back of your mind when you think you're going to either loose your marbles, or never get out of bed again.
deleted_user
deleted_user
I am sorry. And I completely understand. It is so exhausting to keep up with all of the doctors, prescriptions, appointments, and rules and regulations associated with each prescription. I hope that you will get some relief soon. And really, this too shall pass. You will eventually look back at this time as a rough patch, as a time that added to your strength, defined your character, and taught you a lot about yourself. I promise - it will get better.
deleted_user
deleted_user
Toss,
You are always there for all of us that need support. So vent away as much as you need to and me and the others will be there to support you. Getting your self prepared for surgery is tough enough and having all the extra stuff that you have had to is overwhelming. Pacing your self and vent to us as much as you need too.
deleted_user
deleted_user
Toss,
You are always there for all of us that need support. So vent away as much as you need to and me and the others will be there to support you. Getting your self prepared for surgery is tough enough and having all the extra stuff that you have had to is overwhelming. Pacing your self and vent to us as much as you need too.
deleted_user
deleted_user
Toss were all here for you,you have helped support so mny...you are showing such courage ,and you are in control,you are making good desions about what is right for you,and your strength and courage will carry you through this rough time ,think of it as a blip.....
big hugs,and positve vibes sent to you..
deleted_user
deleted_user
TNT: {{Hugs}} Don't you wish you had a personal secretary to arrange all this? Me too! Managing all my appointments and blood tests is like having a 2nd job. Like others have said, you've ALWAYS been there for us, you're the first to make a supportive comment or fill in the gray areas on things we don't know about. I'm so sorry you're having to struggle now, but know WE are here for YOU! Rant away :-)
KS
TossNTurn
TossNTurn
Aw shucks guys. Reading all your comments has brought tears to my eyes. You guys are the best! Can't tell you how much I appreciate all the support and good vibes. Definitely need 'em this week!
Posts You May Be Interested In
  • GreenEyes727

    Caricatures

    Posted by: GreenEyes727
    Last Reply: Tired
    6
    Look at what my best friend did with my picture!
  • GreenEyes727

    Truths

    Posted by: GreenEyes727
    Last Reply: GreenEyes727
    14
    We all have 24 hours in a day.  How we spend these hours is important.  Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do.  Gonna have to work on that.Your turn.  Tell me another truth.