Hi, are you feeling anxious and stressed?

It can take awhile for things to start coming together. I had memory issues for a couple of months after my PE. A lot of people have that. Some attribute it to the anticoagulants. I think it's more just overall recovery. My memory issues improved over time even while on anticoagulants.

I would ask your doc about your breathing issues. It's not unusual to have some continued shortness of breath or chest/back pain, but if it's profound I'd mention it to your doc.

Yeah, I'm stressed out and anxious. I've spoken with my doctor about my breathing issues and I have a Pulmonary Function Test in a couple of weeks. Hopefully, there's nothing wrong with my lungs and my memory will improve over time. It's frustrating because it's taking so long.

Like RMB, I had memory issues for a couple of months after clotting, which scared the crap out of me since I usually have a memory like an elephant, but it did pass. As for sleep, I was the opposite & slept like a baby in the beginning, which was also unusual for me, but that didn't last either. It does take a while to heal, which is frustrating roller coaster for us not so patient types, but if in doubt about anything, definitely see the doctor.

Have you been tested for sleep apnea? The sleep issues could easily be the big culprit, as I understand it your brain needs about a 4 hour sleep cycle to clear out the gunk and if you're rarely or never getting that it could easily cause your problems. Even if you don't have apnea you may find a CPAP or BiPAP machine does wonders to help with the shortness of breath and let you get some rest. Don't just rely on the apnea screening questionnaire either, I had zero symptoms on the list but the overnight oxygen saturation tracking showed I was stopping breathing about 40 times an hour.

My doctor is planning on putting in an order for a sleep apnea test. He wanted to do it a few months ago but there was some question about whether my insurance would cover it. It looks like it will so I should have a test ordered soon.

I was diagnosed in June 2017 with PE and had and have memory issues and sleep issues. I am on Pradaxa and it's working well for me. I talked to my DR about the sleep issues and I was given a sleep aid but it doesn't stop me from being hot/having night sweats here and there. The meds helped me not to wake up throughout the night as I had 1/2 the 25 mg of seroqurl. I know I feel good but do think I am stressed too and anxious even when I don't think I am. My heart rate is still between 89 to 100 and it was at 120 when I went to the ER initially in June.

In all, hang in there and be careful with the meds prescribed to help treat your symptoms. I take the seroqual as a PRN-as needed. But I'm try to beat this without all the other meds as they are harsh on the body too.

Yep , forgetful and insomnia are two of my biggest worries . I had multiple PEs after gallbladder surgery. In June of this year . Im on eliquis and it says that those can be some of the side effects . So whether it's the meds , the PE , or senior moments , im not sure . The fatigue is maddening , im a nurse and was used to going 100 miles an hour nonstop. Now I get winded walking around the block . It's getting better tho . It just takes time

What blood thinner are you on? Those made me feel just like that. Couldn't stay on them because of it.

Eliquis.

I'm on xerelto and I do experience fatigue. I'm struggling with sleep but that is only due to a cough that just doesn't want to let up. Each day I seem to get a little better but it is taking some time. When I was in the hospital they did a sleep apnea test on me. It was odd though because they did it while I was still on oxygen and every person that came in was surprise that they were doing this test while I was still on the oxygen. Hopefully they get the apnea teat for you soon. Fr to stay positive and I wish you the best of luck.

^^^Thanks, my numbers weren't great from the Pulmonary Function Test but I'll have to speak with my doctor to get a better understanding of what my results mean. Perhaps Ill just need some sort of inhaler and that will help with my breathing. Plus, losing all the weight I've gained is essential to my recovery.