Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Hello everyone:
I'm curious as to what everyone else has experienced in terms of post testing after diagnosis and treatment of you PEs? I was diagnosed in early November of 2013. My Hematologist first saw me while I was in the hospital. After two weeks of being out of the hospital, I went to see him again for a consultation. This was when I found out that I had the genetic mutation: Factor V Leiden I. My last visit was on February 11th. During this visit, he took blood from me to test for D-dimer, and some other tests. The results of these tests had great results; there were no concerns. Now, I will need to go back to this Hematologist on May 11th. My concern is that he's doing the same blood tests that he did in February. One of those tests looks for possible cancer cells. Now, he, the doctor, is sure that my genetic disposition was the main cause for the initial clot in my ankle. I'm just nervous about this test and what it might reveal. Has anyone else gone through something like this? Thanks.
Indwen
I'm curious as to what everyone else has experienced in terms of post testing after diagnosis and treatment of you PEs? I was diagnosed in early November of 2013. My Hematologist first saw me while I was in the hospital. After two weeks of being out of the hospital, I went to see him again for a consultation. This was when I found out that I had the genetic mutation: Factor V Leiden I. My last visit was on February 11th. During this visit, he took blood from me to test for D-dimer, and some other tests. The results of these tests had great results; there were no concerns. Now, I will need to go back to this Hematologist on May 11th. My concern is that he's doing the same blood tests that he did in February. One of those tests looks for possible cancer cells. Now, he, the doctor, is sure that my genetic disposition was the main cause for the initial clot in my ankle. I'm just nervous about this test and what it might reveal. Has anyone else gone through something like this? Thanks.
Indwen
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First, thanks for your reply. Well, in February he did give me the tests for D-dimer, CEA, and others. All the tests came back negative for those things (CEA: cancer markers). I talked to him about it and he said that it was just something to rule out and that since I had the FVL, that was most likely the overall cause. However, he will be testing me again in May for those tests so it seems like this is a never ending journey. Can cancer markers show up 6 months after getting a clot? If in fact that is what it is?
Indwen
I wouldn't spin your wheels too hard about it. And you can always ask your doc too. I question stuff all the time when I'm uncertain or feel like something doesn't make sense.
Thank you for your thoughts on this. I did ask my doctor about this and he said that since my hematologist is also an oncologist, he will likely be doing this as a precaution. My doctor also believed, based on all of my blood work, that I did not have any pre-cancer markers. This is something I never had any idea about before I got the clots? It's amazing how our bodies work.
Indwen