Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
I was diagnosed with PE on October 1 after going in to the ER for what I thought was complications from bronchitis.
To make a long story short, I had been undergoing schlerotherapy injections (foam solution injected in vericose veins in my legs) on a weekly basis for the previous eight weeks. I had my last injection two days before my diagnosis and had this really strange sensation, but wrote it off as nothing to worry about. A couple weeks before I had what I thought was a clot in my lower leg, but the doctor said it was phlebitis and I didn't need an ultrasound to check it. As an aside, I had also started half-marathon training and got up to a 7.5 mi run.
I have no other common causes for a PE (I'm a healthy, fit 38 y.o. woman who's not on birth control, no long flights/sitting, not pregnant, non-smoker for 7 years, no genetic clotting disorder that they've detected, etc), so my doctors think that somehow the clots from the schlerotherapy got into my deep vein and travelled up to my lungs. But then my vascular doctor said he's never heard of that happening (I did this procedure privately since it was not covered on my health plan).
Anyways, I'm due to come off Coumadin in the next few weeks and while I'm excited to get off of it, I'm absolutely terrified! Has anyone ever heard of PE's as a result of schlerotherapy? Internet searches don't really come up with much and I'd love to hear from someone who may have experienced something similar
(Thanks for reading.. I've been checking out this page since my diagnosis and it's helped me through some scary/anxious times).
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
My dvt was misdiagnosed as phlebitis as well.
ETA: for some reason my post was not fully posted! Anyways, I keep getting the run around from my Primary physician too.. definitely doesn't help with the anxiety!
How did they detect new clots? Did they think they were a result of the schlerotherapy?