Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
...I'm on Coumadin...been on it since 6/16/09
...was diagnosed with DVT and pulmonary emboli (both lungs) : /
...DVTs are gone...
...I'm having these sporadic chest pains...esp. at night...feels better to lay with pillows under my back...having some trouble inhaling in on lung...not short of breath...pain is about a 5 (1-10 scale)...drops to a 2 when not lying down...
...Can anyone shed light on their PE pain?
...was diagnosed with DVT and pulmonary emboli (both lungs) : /
...DVTs are gone...
...I'm having these sporadic chest pains...esp. at night...feels better to lay with pillows under my back...having some trouble inhaling in on lung...not short of breath...pain is about a 5 (1-10 scale)...drops to a 2 when not lying down...
...Can anyone shed light on their PE pain?
Thank you for the acupuncture and breathing suggestions, I never considered those...great insight...and the heat ex. from showers and heating pad while sleeping feel good. I'll look into you good suggestions. Hope you feel better.
To bawsongirl: you are right...the doctors don't tell us anything...about our conditions in terms of pain. It is shocking. That's why I'm so gratefuly for this internet site! It has provided a great deal of comfort to me along with helping be navigate through this PE matter. Thanks for sharing...
Well folks...I did not take any (yes that's correct any) pain killers yesterday. I find that remarkable, since the previous day I was a 10 (1-10 scale). It's not that I didn't have pain at all (it was generally a 2-3). The decrease in pain was due mainly to "splinting" my chest, with an ACE bandage. It helps so much.
I know at the stores they sell "long" bras...that encompass most of the chest. I'm wondering if I should invest in one of these, so I won't have to ACE bandage my chest....
...there is hope for us!!!! WE WILL Survive!!!!
Sorry for your situation...looks like we have been in the exact same boat you are in, which includes vague pains that come and go...you feel good one day then the next you get lung pains, back pains...seems like it is par...
As far as leg pains...for me...I have not felt the "heaviness" but who knows with these weirdo pains...maybe tomorrow I will...my leg discomfort returns when I squat...
...I anticipate many will say that each of us has our own pains in the chest and legs and back and neck...that come and go with "vague", haphazard times...
...don't worry things will be o.k.....we'll all "tread water" together successfully...
...my PEs have some similarities tomy ex-spouse, suchas:
1. both PEs and my ex-spouse are pains in my chest...
2. both PEs and my ex-spouse are pains in my neck...
3. both PEs and my ex-spouse are pains in my A$$....
...just had to make a funny...some of us can use them from time to time...for those of you who have no ex-spouses ...feel free to replace "ex-spouse" with "mother-in law"....if this does not apply either than use "the economy"...I think we can all find common ground there.... ;} Have A Good Day Folks!!!!
Seems like this site is the only place where I can get a straight answer nowadays...
How often do you guys get your INR checked? (I'm concerned)
at the moment i am having my INR checked every week, the last time i was on warfarin it started out weekly but i did go to monthly, so i have no doubt when they get my INR stabilised i will end up monthly eventually. Last year on the 5th Jan my INR was 2.9, 2nd Feb 2.0 this included having a few beers for my birthday, so really dont be to concerned these people are the experts.
Cheers.
To DavidT1952: ...a pain of +10...how awful!!! I sure hope you have gotten better...I know how you felt...I've had my few down days too.
lover1 my Dr. said that the pain in my chest is from inflamation of the connective tissue in my rib cage. The name he said is costroconjustis sorry about the spelling.
He said that you get it because you do not breath right like after PE and everything in your chest gets inflamed. He also said it can be very painful ( I allready knew that ) and it can last for awhile.
Like all of you I can not lay flat to sleep it is too painful. So I bought a foam egg crate for a twim mattress and folded it so it makes a nice incline on my bed. That makes it easier to sleep but not perfect.
My legs also feel like lead weights, and I have gained 35 lbs. since I had my PE send me to the hospital back on April 11 2009.
I have so far spent 25 days in the hospital because of this and everything that has come with it. 11 days were spent in the hospital just because of the pain i was having because of the PE's boy that was no fun.
well I have written enough,
mnmmom-kathy
I regret that you are having problems with you legs. You gained 35 lbs...Holy Toledo...what does your Dr. say? Did he/she rule out lymph edema?
Looks like everyone has had pay lying down...
I started this summer relatively "healthy"...little did I know that I would end this summer as hemophiliac taking "rat poison"...
I get my INR checked weekly, althogh I stilll can't gt up to a therapeutic level (1,5 again yesterday) - so now I get to to to the gp every morn from mon 20 july.
Looks like you and I started our PE ride around the same time. I appreciate your comments. It's funny thinking that the "doggy style" would bring comfort to your lungs...but glad that it works...
...gosh I felt bad having to go to the dr. weekly...regrets to hear that you have to go daily.... I wonder why it's taking so long for your INR to get up...
...my lung pains are almost gone, but tomorrow is a new day. My leg is acting up again with swelling due to DVT...I wonder if you had any DVTs...
Sorry it took so long to Thank you for your kind words the other day. And I do agree that we all tread water together. Its wonderful to know that none of us are alone.
My doctor told me yesterday to come back in 2 weeks (insted of 1) but my inr was low and she added another milligram. after many protests from me I was told I had to chill - everything will be alright.
I guess sometimes we have to just trust and accept. (because if we dont we will add more stress to our already stressful lives.)
Wishing you the best and as always thanking everyone for their help and support.
My wife was in the hospital for 5 days because of a DVT in her leg, after hepran and coumadin therapy she went home on the same day she had a massive pulmonary embolism to both lungs and had a tachardia/heart rate over 230 bpm ...they had to joult her heart twice to lower it....after being in Icu and 5 more days she returned home....after 1 week she had pain in her chest and could not catch her breath-====back to the hospital where her heart was checked extensively,,,,,,no one in the hospital....not one explained what has been explained in this blog..................................some of the doctors and nurses labeled here as high anxiety and even placed in her record, she was not anxious she was feeling exactly what everyone here has been feeling..the medical society might learn something by reading up on sites like this....very helpful for me and my wife to understand what everyone else is going through, maybe coumadin can create some material and flyers for patients that have SURVIVED an embolism...Does anyone have shock feelings or sensattions that joult their body just sitting or just about to fall asleep! Keep up the info it is very helpfull---for EVERYONE--