Yes, especially after I went back to work.

Absolutely. That stuff will come and go for a while...and it'll seem like it came out of nowhere! I had several times where I had to take the afternoon off from work and go home and sleep. It's really all you can do.

Hi Danielle, I am 7 weeks post PE myself. I went to the doctor myself because I am starting to feel worse than I have the last few weeks. I am hurting in the same spots that I was when I was in the hospital but just different pain. I am started to get a little tired again but not like it was first few weeks out. You are NOT alone on this. My doctor ordered a CT scan that I should be getting soon to check the progress of my clots. I had a DVT and PE. I don't get the dizziness like a lot of people do but I hear it is common to feel that way. I want to go home and sleep today myself. If it doesn't clear up in the next few days you may want to talk to your doctor -- it seems to help put yourself at ease some. Keep us updated.

Thanks for the input: I think it was just some more healing going on: felt really bad for the whole week, going to sleep early, having pains, especially in my left shoulder. Lots of sleep seems to have settled things down.

It just took me by surprise because the really awful feelings seem to come out of nowhere!!

I can relate. I still have flare-ups from my pe's even though the last ct scan showed they are gone. Two months after I was diagnosed (may 2012) I started to have worsening pain that would come on sporadically and then the pain returned even worse again when they finally disolved out of my lungs. Hang in there, things will get better and strength will return.

I'm. 2 months out from my PE and I feel really tired most days. I am finding that I need close. To 10 hrs of sleep to feel rested. I went back to work and it is a daily struggle. Dr. Did some blood work, everything came back fine so she couldn't explain my fatigue. I am going to request to see a hematologist. You are not alone!

Lord yes! I can completely sympathize with the fatigue! Don't have much of the other stuff... mine is mostly fatigue and "Can't think straight-itis!" I will do great for a bit and then boom! Out of nowhere, the fatigue hits again. You are way ahead of me if you are able to return to work. I just started back to work part-time this past week.

Hang in there. I am much better than I was 3 1/2 months ago.

Tim

I'm just 17 days from my diagnosis, and this has been a horrible day. I felt better the day I came home from the hospital than today. I appreciate all of your posts and hearing that others have the same return of the pain and tiredness. I'm trying not to panic when the pain gets bad, but it's hard. I feel that I shouldn't be in bed or sleeping so much, but that's all I have been able to do today.

Yes! When I first went back to work I didn't work full days. I worked half days for at least a couple of months. Am now over a year post PE and feeling much better. Still on Coumadin, so have not had a subsequent PE. I would say it took me a good 8 months to feel totally normal.

Part of why we feel worse after the PE is we actually start using our bodies in a normal way, going to work, doing stuff around the house,the simple act of going to the grocery store. Every task you do requires more and more energy and it starts to add up. And then it sort of sneaks up on you.

I can't speak for a anyone else here, but for me, in hindsight, I think I experienced a strange euphoria after the PE for that first few weeks I was home. It's that thing where you're happy to be alive and doctors say you're ok, and you are on this high. And then the reality of living your day to day life, on top of the sudden realization of what you've just been through, well it can really take it out of you some days Recovery is a marathon not sprint. You are going to have really good days and then days where you feel like you've been hit by a truck. Soon, though, the good days start to outweigh g the bad days until there are mostly good days.

Get all the rest you possibly can. Your lungs are healing and that takes a lot of energy. If you haven't already, apply for FMLA with your Human Resources department. I used it for those days that I felt awful and couldn't go to work. It also helped for those days when I couldn't work a full day and dr. appointments. FMLA protects your job while you are on the mend.