Not off yet, I have a dr. apt on thursday, so hopefully that will be my last day. I'm getting really anxious though. :( I guess that's to be expected. I'm really hoping I'll feel better off this stuff!

I should be off today as well, but they've just told me I'm now stuck on it for another month as my INR is too erratic.
It wouldn't be so bad if the reason was blood related, but I know (and they do too) that it's the emotional stress I've been under these last few weeks meaning I haven't been eating & sleeping properly which will have affected the INR readings... and it was low this week because they made me stop it for 3 nights to allow it to drop!!
I'd got my head round coming off it too, and it felt like I'd finally get that extra little bit of control back in my life...
It means the screening tests will also be put back too, and I was all psyched up to get them done soon so that I could try and shut the door on this whole miserable year... oh well, not to be...
One plus point is that I no longer need to do the 6 clexane injections when I go on holiday, but the down side it also means I'll be restricted to my one alcoholic drink a day while away...

But on the positive side, it's good to hear that everything is looking up for you Evelov, and I hope you only have the few days extension to yours, JennerM...

Csteeps, I'm really sorry to hear they want you to stick it out for another month. :( A month ago I was REALLY ready to be done with this stuff, now the closer it gets the more worried I get. The 19th was supposed to be my last day, but I was traveling (13 hours in the car), so my doctor agreed it was best to stay on for an extra week. I'm pretty sure she'll tell me I can be done on thursday though. My INR was up and down for a while, but was in range for the first 3 months, and has been between 2.5-3 for the last month. Hopefully 6 months will be enough, and all my tests will come back clear. I guess I should start my 3 day countdown now!!

Mine took the first 3 months to get above 2, then settled at around 2.3 for the next few months.
I had an INR done before my marriage fell apart and was told not to have another for the last 5 weeks and just have it done on the day I was due to finish... then all went pear shaped and its been all over the place, as high as 6.5 last week, now too low this week again...
I can understand the reasoning behind giving you the extra week with the travelling, but I don't understand why I need to stay on it longer, surely it would be better to just let me stop taking it as originally planned.... because at this rate they could end up leaving me on it for much longer as I can't see things settling down in the near future...
3 days is not long though for you, it's got to be a good thing for you to resume your usual lifestyle without a thought for timings, blood appointments, vitamin k content or INR results. Good luck with your testing xx

csteeps, were your PEs unprovoked?? I don't understand the extra month either. My doc was considering letting me come off after 3 months, but my anxiety was SOOO high at the 3 month point she said 6 months just to be on the safe side. My PEs were after surgery while on bc, so they're pretty confident I'm safe to come off. None of the docs I've consulted really think I need any further testing, but fortunately my GP understands my anxiety and is willing to order them for me! I'm wavering between really excited and reallyl freaked out!

Guys this is the first I've been on here for a while but I stopped warfarin beginning April and I've been fine. Been on holiday, travelled 11 hours by car, no probs, just wore some flight socks & had a few extra stops. Currently being tested for Hughes syndrome (sticky blood) but trying to live normally until I get a diagnosis, enjoying the freedom to have the odd g&t just Incase I have to restart warfarin and become the designated driver again for nights out. Lol. Still getting infections which sucks, still very tired & need much more rest but otherwise good, finding my new normal.

Yes, mine were classed as unprovoked. I'd just done a short haul flight from Spain (2 & 1/2hrs) a couple of weeks before which they're dismissing but they're also dismissing the hrt I'd been on for about 10 mths at the time although I thought that any hormones were a known risk...
Good to hear from you Jmac, glad all is well with you at the moment x
Carol x

Glad to hear from you too Jmac!! I'm happy to hear things are going well for you and I hope your tests come back with good results!

Carol, my aunt had PEs that were directly attributed to HRT. She stopped the hormones, did her 6 months on warfarin and hasn't had any further clots. I'm surprised they are dismissing that as a possibility. It seems to make good sense to me. If all goes well, I now officially have 2 more doses of warfarin (12.5mg total!)!!

Jenner, stay positive! And look forward to enjoying being off it!

jmac...Thank YOU for coming back to report to us and share. We need the encouragement!

Csteeps...I am not sure why the INR mattered if you were going off to be tested? After a few days, it's going to be low anyhow, right? They didn't bother to check mine. And my use of hormones just gets dismissed too. I've actually been wondering about that!

I am continuing to take an aspirin a day, hydrate frequently, continue with my workout, eat healthy. I am getting another sinus infection though. I am noticing that too.

I've got to go google Hughes Syndrome. I wonder if I've been tested for that? I do have Prothrombin Factor II.

And Jenner, you will be in my thoughts and prayers on Thursday and the following days. : )

Thanks! :)
2 more days and starting to freak out...

Remember, you will still have your Coumadin/warfarin in you for the first few days. It takes about a week to clear totally. So try to relax!

Fingers crossed for you today JennerM xx

For those of you going on warfarin, try to relax and enjoy it. It really ends up being such a relief to get off and not be tied to medication every day, and not have to worry about what you're eating all the time. Csteeps, I cannot understand in any way why in the world your doctor would have you stay on coumadin another month because it had dipped low. I can't even imagine why they would bother to test your INR on the day you were to go off. My doctor actually ended up taking me off coumadin a few months early because my INR was consistently a problem - every time we got it in range it'd dip again, so if you had been mostly consistent in your INR for your time on it, you would theoretically have been in better shape than me to go off. There's no reason in the world I can think of why the doctor would leave you on for having a lowish INR, when once you're off it's going to come down anyway. Makes absolutely no sense.

That doesn't make sense to me either. My INR was sub therapeutic for 5 of the 6 months I was on warfarin, and finally when it got above 2, they didn't even bother testing it again after since I'd only had a few weeks left on the stuff.

And you guys, it really is a WONDERFUL thing to come off warfarin. I know it feels a little unnerving and stuff, it's not a death march. Your life is starting anew. Try to embrace that.