I can't say for sure, but it sounds a little like anxiety to me. Have to dealt with anxiety before? For me, anxiety mirrored all the symptoms of PEs and I did two return trips to the ER because of those symptoms.

I'm not saying don't get checked out--and you definitely should, especially if this is keeping you up at night worrying--but keep in mind that anxiety can be a culprit with these things some times.

Yes, anxiety could be a factor and I've had a few episodes, including one major episode two years ago. Scary stuff!

Scary stuff. Do you have an oximeter? Mine helped me through a couple anxiety attacks just by seeing that I am getting enough oxygen and that I'm just freaking myself out.

I've discovered that my lung starts to hurt when I'm getting low on oxygen. So my two cents worth of advice: evaluate your pain while you're calm, then get to a doctor if you're still worried.

Best wishes for your transition to health!

Oh that was me when I came off warfarin too!! I hadn't had stabbing pains or real SOB issues in months, and what do you know but one week off warfarin and they're back. 8 months later I can safely say it was 100% anxiety. I will still have issues from time to time, and even though I've landed in the ER a coule times, it has always boiled down to anxiety. Now I just give myself set amount of time to calm down, go outside, etc. before I allow myself to freak out. I'm not saying you shouldn't get checked out if you're really worried... I talked to my doctor pretty regularly for a month or so after I went off warfarin, but it may very well just be anxiety!

Another thing that I've noticed, and that started last August, when the PEs were most likely already there but not causing any major issues.

The first thing, which is mostly an annoyance, is that my nails are so terribly brittle that they keep breaking all the time. Annoying, but not concerning.

The other thing, and that's baffling to me, is that my skin, especially my legs, is so dry! I've never had to deal with dry skin before, but it's now to the point that my legs are scaly!

Added to everything else, including the renewed issues with night seats, it's driving me crazy. And, yes, the night sweats re-started when I stopped the Coumadin. It's still Winter here, and quite cold!

My nails went to hell after my PE. I developed these really deep ridges in my thumb nails especially. Someone told me that's from the PE / lung trauma. I can't remember the exact explanation though. I have a malabsorption problem due to an autoimmune disease so not being able to probably absorb vitamins and minerals makes my nails kind of thin and brittle anyway. I'd look into making sure your staying hydrated which can make your skin dry. So can other medical issues, like thyroid problems.

Night sweats can be caused by a series of things, ie perimenopause, menopause, thyroid issues, anxiety, etc. I'd not lay that one specifically on being on or off warfarin

I am right now dealing with my chest hurting and SOB and it's making me miserable. Already landed me in the ER once - I was off the thinners for 1 week and low and behold they CT scanned me (which of course was clear).

Right now I'm basically one month off thinners and honestly am at my worst and dunno what to do. I can't wait for remaining genetic tests to be completed. I'm on pins and needles wanting to know all of the results.

Working with my therapist isn't enough and I'm trying all my meditation techniques and nothing is working. Seriously, when does this shet end?

I'm not sure it will ever end completely, but it certainly gets much better. People on here had to tell me that for over a year before I actually started to realize that it's true. Yes, I still worry, I freak out more at any SOB or chest pain, I still check my legs everyday for swelling (which is REALLY stupid since I had no swelling when I actually HAD clots), and I'm just overall more aware of everything. I was a HUGE mess for my first month off warfarin. Even getting the results of my genetic testing that showed I was negative for everything didn't help much. I think once I was off the warfarin things just got gradually better over time. I still don't make it through the day without thinking about my clots, but I am no longer obsessed about it.

Danielle, my fingernails were a mess while I was on warfarin and for several months after I stopped. I can't say much about dry skin because it's so stinking dry around here I have to use a ton of lotion normally. And the night sweats, I had after I stopped warfarin too. I was SOOO cold the whole time I was on warfarin I think my body just needed to adjust to the change.