Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Ok I am freaking out I had PE with multiple clots 3 weeks ago. My daughter who is 23 not on birth control no surgery goes to hospital with leg pain and shoulder pain they find a 8cm clot in her groin that they has to do surgery strip the vein and he is now on warfarin and Lovenox until therapeutic they tell me that I did not test postive for factor 5 that it was due to my surgery. Now I am freaked out to stop the Coumdain in 6 months ji see my doctor tomorrow any advice?
-
Look at what my best friend did with my picture!
-
We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
I'm afraid there is just no cut and dried answer as to whether to come off Warfain or not. We can only trust the advice of the medical professionals who are treating us - and even then we have to remember that once having had a DVT or PE's the odds of having more are greatly enhanced - whether on anti-coagulants or not.
I was clot free for three years on Warfarin after nearly dying with multiple bilateral PE's. I wanted desperately to come off Warfarin. My pulmonolgist said OK, my Haematologist said fine, I had Dopplers and ultrasounds galore which confirmed I was totally clot free. Within two months of coming off warfarin I developed a DVT, multiple PE's and a mild stoke from clots.
Now the push to come off warfarin was initiated and driven by my desire to be free of the discomforts and restrictions of warfarin therapy. My docs examined the physical and genetic evidence and thought the risks were minimal.
So where does that leave us? The decision whether to cease warfarin ultimately rests with ourselves. Take advice from the medicos, research as much as you can, try to decide whether the warfarin is just a security blanket or a medical necessity. We just have to accept that our bodies are imperfect machines and that on occasions something will go wrong. There are just no cast iron guarantees that a decision either way will be the right one.
I hope none of the above sounds less the empathetic. Nothing could be further from the truth. Having been through the PE wringer I feel desperately for you in your situation. The mental and emotional turmoil you are going through must be immense. Whatever decision you make my thoughts and best wishes are with you.
Larry
I have no genetic clotting factors, and have had two separate clotting episodes. My brother then also had a DVT last year. Once his warfarin time is up, he's going to meet with his doc to determine next steps, because based on the fact that there's obviously a family history of clotting, despite not knowing the cause, they may consider recommending long term warfarin for my brother as well
And ... take a deep breath. You don't even have to really focus on coming off warfarin for another five months. You have plenty of time to do more research and see what results your daughter gets. Definitely talk to your doctor and see what options there are and whether more testing might be in the cards. Maybe ask for a referral to a hematologist too, just for a second opinion.
Gather information, that'd be my advice. Ultimately, it should be your choice to stay on or come off the warfarin.