Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Now on the other hand, my mom who is 63 just had her 2nd PE and in a matter of weeks she is feeling almost normal and back to work.
So recovery time seems to vary greatly. I find this to be one of the very frustrating things about PE's. There seems to be so little information on recovery and even doctors seem fairly clueless when it comes to recovery. I am getting tired of hearing doctors say, "I would expect you to be doing better by now" and "The tests came back normal so you shouldn't be having all these problems."
Hang in there as tough and frustrating as the recovery is...it does get better, or so I have heard :/
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Recovery can be a long road, and everyone's journey is a little different. A PE is not something that the body can shrug off quickly. There are multiple systems that got damaged and/or stressed. Don't worry that something else is wrong just because you're not bouncing back quickly. It takes more time than anyone wants it to, but it does get better. Good luck and happy healing.
I am 55 and 3.5 months post PE/DVT. Like someone else has already said the recovery varies from person to person so there doesn't seem to be any hard and fast rules.
I do pretty well most days but by the time the weekend hits, I just want to crash and burn. I only work 2 hours a day for the local school district but am raising a 6 yr old grand daughter and helping my son, his gf, and 4 month old baby try to get on their feet. My hubby was also laid off the middle of August and is looking at a total change of profession. So lots of stress in my house & life!
I do feel better then I did but there are still a few bad days here and there. It also seems to make some difference to a point depending on what medicines you are on all together.
Things do get better and that is what you need to keep in your mind. It can be slow and frustrating to be sure but hang in there. You are NOT alone by any means! Glad you found us!
The thing is, you start doing more after a while, which actually makes you really tired. So there's some of that balance in the beginning of doing things, being active, but also taking care to find your limits and rest a bit. I was exhausted that first month after diagnosis. But I also went back to work soon after after getting out the hospital and that played a role in my fatigue. In fact, I blame a lot of my fatigue on being laid up in the hospital for 7 days. I barely slept at all while in the hospital since everyone was in my room every 5 freakin' minutes. You almost need to recovery from that experience and the PE.
Hang in there, and to echo edmie said, don't take it as a sign that something is wrong or that you're not getting better. It really is just part of the recovery.
I went into the hospital on a Thursday, was sent home Friday and was back at work Monday.
I am a runner, and it took me about 4 months to even feel comfy running, but that was more out of fear, etc.
I had bouts like this--with increased pain, SOB, and exhaustion-- up until about 11 months out. I'd be fine for a while, then push too hard or be out in extreme weather or be exposed to fumes or something, and then I'd have to spend a couple days exhausted, with increased SOB and pain.
So origin of the blood clots is still a mystery....argh...