Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
AndersDanAnders
Hi,
I had massive PE in may 2014.
I don't use blood thinners anymore and mostly feel just fine.
Last check up was in november when they said there were still some residual clots, but nothing to be concerned about.
I feel fine most of the time. Sometimes out of breath a little fast, but nothing really bothersome.
What worries me is that my heart rate seems to rise really quickly every time I do something.
Resting heart rate in bed is around 65 - 70. Sitting on the couch maybe 70 - 90
Walking up one flight of stairs it can easily go up to 140 - 160. But also goes back down pretty fast (a minute or so).
When I do mild exercise at the gym it is always very high as well. Using the eliptical machine at moderate speed its 165 within 10 minutes.
Using the treadmill for just walking about 6.5 km per hour (4 miles p/h?) it is also up pretty fast.
Riding my bike to work (15 minutes) at moderate speed, heart rate of 140.
I am just worried this isn't normal. My next doctors appointment is in a month.
Do any of you recognise this ? Maybe it's normal post PE? Also are you also so tired and just going through the motions? Can't seem to get my 'groove' back.
Thanks
I had massive PE in may 2014.
I don't use blood thinners anymore and mostly feel just fine.
Last check up was in november when they said there were still some residual clots, but nothing to be concerned about.
I feel fine most of the time. Sometimes out of breath a little fast, but nothing really bothersome.
What worries me is that my heart rate seems to rise really quickly every time I do something.
Resting heart rate in bed is around 65 - 70. Sitting on the couch maybe 70 - 90
Walking up one flight of stairs it can easily go up to 140 - 160. But also goes back down pretty fast (a minute or so).
When I do mild exercise at the gym it is always very high as well. Using the eliptical machine at moderate speed its 165 within 10 minutes.
Using the treadmill for just walking about 6.5 km per hour (4 miles p/h?) it is also up pretty fast.
Riding my bike to work (15 minutes) at moderate speed, heart rate of 140.
I am just worried this isn't normal. My next doctors appointment is in a month.
Do any of you recognise this ? Maybe it's normal post PE? Also are you also so tired and just going through the motions? Can't seem to get my 'groove' back.
Thanks
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If you're conditioning took a hit over the year, that could explain that and your fatigue as well.
I did have issues with keeping my HR under control after PE, and it ended up I did have some further issues going on, but I also think my numbers were a little more extreme than yours (which I'm only sharing to try to reassure you that you're probably fine). Unmedicated, my resting HR was usually above 100 and when I attempted to exercise, it almost immediately jumped to over 160, and even when walking so slowly on a treadmill that I could barely tolerate it, my HR climbed to over 185 within a couple of minutes and just kept rising. My doctor instructed me to not allow it to get above 165, which quite honestly was completely impossible. During this time, my day to day life was substantially limited and I frequently experienced significant chest pain, far past a year into recovery.
Eventually I saw a cardiologist, and again as another comparison to your situation - when I had a stress test, I already had started a beta blocker, so as I sat there waiting for the test to begin, my HR was 65. Just by standing, my HR jumped to over 100, two steps up onto to the treadmill it was over 125. The nurse explained the target was 185 and/or (I can't remember) 10-15 minutes on the treadmill. I don't remember how long it was exactly, but very shortly after I started walking, (she never even increased speed on the treadmill), I was over target HR and the doctor came and cut the test short, not having had the minimum amount of time they initially wanted from me.
So, I think it's good to talk to your doctor about how you're feeling, and I can see from your response on another discussion that you already know to go well prepared with specific questions. The more information you can give your doctor (such as where your HR is at rest and exercise and such) is always going to be helpful, so you can even keep a log of that if you wanted to. Also, be as specific as you can about how you're feeling. Is your life being limited by how you feel (even cutting out normal social activities is considered a limit, like if you need every ounce of energy you possess to do the things which you MUST do, and have nothing left for normal recreation)? Do you have any consistent or regular pain? Do you feel okay after exercise or do you have any negative physical symptoms after?
To me, your stats look alright, and if you're not having episodes of pain or feel difficulty breathing, then you're probably doing okay, but just discuss it all with your doctor, it's best to be vigilant and proactive if we're not sure. If he feels that things are okay in general, maybe ask his advice in how to build yourself up the rest of the way physically, so you can get your "groove" back again.
A year recovering is a good amount of time, but I think there are still plenty of people who kept feeling better after their first year. Hang in there, and I hope your doctor's appointment will be productive! Glad to hear you're doing as well as you are, also, and I hope things will just keep getting better!