Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
help i had my last clot in Oct 2011. i never went home on oxygen. now 11 month later i am on o2 during day sometimes and all night. the pain is unbearable. every time i take a breath in i am screaming in pain. i have recently been diagnosed with gastric antral vascular actasia which is a chronic condition that causes stomach ulcers and bleeding. once discovered the ulcers can be cauterized, at this the i had quite a few and and am very anemic. no one has said that this particular disease causes enough anemia to cause me to go back on back on o2. oe cause such excruciating pain. does anyone have any input, all the doctor did was touch around my rib cage and i was in tears. i hope to be off of o2 soon. but i certainly can tell the difference with o2 on/off. when it is off i can barely talk and i just keep falling asleep.
if anyone has input please help
brenda
if anyone has input please help
brenda
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
I have ulcerative colitis where my colon develops inflammation and causes internal bleed, a lot and it can totally bring your blood counts so low that you end up with sever anemia. I've had to have a blood transfusion and iron transfusions because of it. So it is possible you've been bleeding for a while and may not have known it, so you can be very anemic.
As far as a pain, it's hard to know why you'd have so much pain. Did your doc say why? I wonder if you could have either costochondritis or Tietze syndrome which can be very painful when you touch your ribs or when you breath.
Something definitely sounds not right. Whether or not it's still related to your PE is hard to tell.
The iron infusions do help. It's just often not instantaneous; it can take a few weeks to kick in. Severe Anemia is terrible. It just causes you to feel so unwell and fatigued in a way that is indescribable. So, I hope the iron treatment gives you a boost. And I hope your pulmonologist figures out what's going on.
Hang in there, Chi. Let us know how it all shakes out.