According to the research I found, two thirds of patients felt back to normal after two years so it is not at all strange that you would still feel tired after a couple months. There is a lot of variety in people's experience, but try to do a little bit each day. It will be so slow that you won't notice the improvement until people you don't see every day point out how much you improved since the last time you saw them.

Thanks so much for your response.

I would agree to try to do a little bit each day and just slowly start to increase it. So many factors can contribute but honestly I don’t think it takes much after a health event to significantly affect your conditioning, stamina etc. You were only just diagnosed a couple of months ago. I started feeling noticeably better around the third month and then by the 6 month mark I felt really good. So what describe isn’t unusual to me.

Hang in there!

That is very hopeful. I will gain strength from your experience. Thank you

I feel you hon and totally feel the same. It's horrible, in my mind I will think of all sorts of things I want it need to do. Then I try and stand up to do them and am reminded over and over I just simply can't and it's very hard. No stamina anymore at all. I'm hoping it gets better even tho it truly feels like it never will

I had a PE 7 years ago when I was 50. I don’t know if you are able to, but I found a little light exercise on a bicycle really helped me. I began to enjoy it so much I got up to 30miles a day as I started cycling to work. If you are able join a cycling club, they will be very understanding and supportive in my experience. Within a year I was doing 100mile charity rides despite not being on a bike since I was 16. Just start slowly and your stamina and fitness will begin to return. Good luck!

Kayaker2 you are doing fantastic! Im 46 and I had a PE 2 months ago, I still struggle with everyday life.

I’m 38 , I have double embolism in both lungs. (3/7/2019)

Today I went for another CT they said they have went down significantly.

However I run 6 times a week. They also found a lesion on my kidney they wanna do a MRI on. Again these PE were unprovoked.

I’m getting stronger day by day. I take elequis 2 times a day.

I’m a tad nervous it maybe serious. I see the oncologist / blood doctor 3/28. Anyone here have any underlining problems. Before diagnosed. ?

Hi Plower1,

I think there have been quite a few runners and athletes here over the years on this board who developed clots, where there was no underlying condition as the cause. The hematologist you see maybe able to shed some light on that. Most hematologists are oncologists. I just mention that should the oncology part make you a little nervous.

Hope your spot on your kidney is nothing. That’s the part about having a ct scan that can be unnerving, finding something else to worry us. I had a spot on my spleen and an enlarged thyroid, both of which would have never been noticed if not for the ct scans I had for the PEs.. Both ended up being nothing serious but man it can mess with your head.

Thanks. Today I did get another image of kidney. Waiting on docs to report. PEs seem to be reduced in size significantly according to CT on Monday.

I’m running 15 min miles. Staying slow and steady. Realistically I’m blessed and all my energy is back. Just you can tell based on circumstances (PE) how winded I get. Again new.

I’m walking into the blood doctor now. Oncology scary word.

So as of today 4/25/19 my Bi PE are shrinking . Im keeping my heart rate up to aprox 135-145 bpm at cardio (6 days a week) . They found no apparent reason for this event . However they are saying ill be off blood thinners (eliquis) in three months. Ive had 2 CTs 1MRI Multiple ultrasounds. No cancer , no heart issues and I will be back to full duty on May 15 2019. I take cold showers and eat all the right substance to help my body to do the fighting . I was diagnosed 3/7/2019 . To be continued ..... love and positive vibes to all suffering and recovering . Be your best advocate with the medical field . Record everything and insist they fight this like its their family and their body .

I was told after mine it would take at least 6 months.

I'm quite surprised while you are healing from PEs that your doctor didn't tell you not to wear compression hose.

So ... here’s a spin off. March 2019 Doc’s found 2 clots one in each lung. (Me - 38 yrs old - active - work out 6-7 days a week ). Well after testing and non stop persistent push. We found out I have factor V Liden. This is a genetic blood thickening disorder. I’ve been on eliquis 2 times a day. Next month they’re determining whether I stay on this or aspirin. I definitely feel it when I work out too hard. I have 10-15% lung damage and feel it when I’m doing cardio. I’m blessed but hard on my self. Energy is 90% back but have bad days. Learning when to turn it off is my problem. Still full of piss and vinegar. My direct email - mdsasphalt1@yahoo.com if anyone has any questions new to PE. It’s scary and oblique when dealing with medical staff. I always record my appointments and make sure they answer all my questions. Love and best wishes to everyone xo