Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Ferr
Went to the Hematologist yesterday to determine if it was time to start back onto Coumadin or not. Yes after all the weirdness since September of 2013 which I won't go into, I guess I had finally had enough and kind of broke down and just couldn't help but start crying. My Doctor looked at me and asked me, So How are you coping? I replied that I was managing , by trying to get out and do things in spite of the snow and being unable to drive, trying to stay on track and be positive. I try to shoot my bow when my eyesight is not so screwed up I can't see straight, and I have been trying to start working out. Then he asked me again, How are you coping? I finally looked at him and told him well I guess I'm not. This is coming from a woman who can conquer the world and I had to face the fact that maybe I wasn't coping. I was trying to go through the motions but I wasn't really coping and yes I was very angry. My doctor put my condition into plain and simple terms for me. He told me you need to learn to cope with what's happening in your life. You are no different than the person who just learned they have diabetes and has to be on insulin the rest of their lives, constantly checking their blood sugars or has lost a limb and can no longer feed themselves or walk or has cancer and is facing maybe chemotherapy or radiation therapy. You first have to grieve the fact that your life is no longer the perfect little world you thought it was, You have to face the fact that now you may have some limitations and you might have to find some other way to do things, then you learn to live with the changes that you have to make. He told me if I didn't learn to cope and do these things then the bitterness of my losses was going to eventually consume me. He also told me it wasn't a weakness to seek counselling to talk it through, to help me figure out how to deal with how to cope with all the changes. Yes all sorts of things went through my mind after leaving the doctors office from, OH great that just confirms it even my doctor thinks I'm nuts, to feeling sorry for myself, to being angry, yes the whole gambit of feelings. Finally when I went to bed I started feeling acceptance of the fact that maybe he was right I'm not superwoman. I had somehow just masked all these angry feelings that broke my coping mechanism since September and I needed to get it fixed. Maybe I will go visit that counselor to help me get back to the confident person I was, so I can seriously get back to living my life, changes and all
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
I have to agree with what shelley had to say. Therapy can be great because it lets you vent without burdening anyone. Friends and family feel like they're at fault if you're unhappy, which can make talking to them difficult sometimes. Being able to whine and cry with no judgment with someone who will not take any of it personally can be really nice. No harm in giving it a shot, if you can swing it.
I will say that sometimes it takes a couple of tries to get a good therapist. Just like how we sometimes have to switch doctors to get someone we work well with, the same is true of therapists. I've seen a number of them over the years for different reasons and some of them were really just useless. But, once you find one that you "click" with, it is totally worth it.
You've had more than your share of bad days, Ferr, and I can totally understand why you'd be mad, sad, in denial, and etc. and etc. I'm kind of glad that your doc called you on it and is making you take a look at where you are and where you want to be. Hopefully, you'll take this as just another challenge ... and I know you're good at stepping up to a challenge here and there.
I think this might be a very, very good thing for you. Keep us posted on what you decide!
I have done counseling in the past a couple of times, to help me work through some health related issues that were taking a toll, including after I had my PE. It was profoundly helpful. What you have been through is an extraordinary experience and it would take down a lesser person completely. So do not look at is a failure, a weakness or that you're somehow not dealing properly. Think of it as just an opportunity to gather more fire power to help you navigate things.
I have been through some similarities in learning to deal with my heart condition. But have a doctor in your court who realizes not just the physical toll these things take but the emotional one as well, is such a huge help. Unfortunately, I've had to basically get through the emotional side of it on my own all along, because I didn't even have the option of seeing a therapist. But if it had been possible for me, I'd have done it in a minute because I just think they can really help speed along the emotional healing.
It is good to remember that we can't think of these different problems we have as some sign of a weak character or constitution. No one looks at someone with cancer and says, "Oh, they're so weak and pathetic," yet for some reason when we have these other types of problems that are less well understood, we somehow tend to blame ourselves for not just snapping ourselves out of it. But it's not possible any more than someone can will themselves to be cured of cancer or diabetes. All you can do is learn to manage it. It has been one of the hardest things in my life to accept the new limitations my life has, because I still sometimes slip back into feeling like I should be able to do x or y. It's not even just that I think I should do those things, it's that I want to do them! I live on the Gulf Coast now, and one of the things I've been absolutely dying to do my entire life is go kayaking in the Gulf or the bay here. But my heart can't take it, at least not yet. I'm making progress finally, and maybe I will eventually work back up to that, but for right now if I want to do that, I'll have to be sure to do it tandem so that if I have problems I'm not responsible for getting myself back. We learn to make adjustments, and rmb is right, this will just be an opportunity to gain more fire power to manage your life from this point forward. But grieving and accepting the situation we have, there's no shame in that, in fact quite the opposite I think that takes real strength, partly because we have to learn to trust ourselves and not gauge our view of ourselves by the opinions of others. But it also gives us freedom once we can accept it, as contrary as that might sound, that we gain emotional freedom by accepting physical limits. It helped me a lot when I realized that accepting my limits was not the same as giving up. It's kind of a challenge in itself, to work smarter not harder, and even to find new things that fire me up the same way as the activities I already love.
I know you're a fighter in every sense of the word, so you'll figure it out. Sometimes we need a breakdown in order to get a fresh start.