Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
laurabp
Hello, I belong to some other DS support groups and found this group after my daughter, age 36, had trip to the ER a couple of weeks ago with blood clots in her lungs. Scary! My question to all of you is what are you doing about diet while on warfarin/coumadin? She has had contradictory advice from doctors - no dietary restrictions from one, then a list of foods to avoid from another. I have found several lists and they are somewhat different. The best sounding therory seems to be that you can eat a lot of stuff in moderate armounts and need to be consistent. I would appreciate any insight you can give me. Also, are you in fact, on this medication for the rest of your life? Again, I keep hearing conflicting reports. Thanks, laurabp
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Just had an interesting conversation with ChatGPT! It was kind of like talking kindly to myself. You should get the App. It's free.
As to whether it's a medication for life, that's just a question of what the doctors think is best in her case, with a lot of different factors in play, including whether they find that she has a blood condition which predisposes her to abnormal clotting. But I think most people who get clots are only on coumadin for a period of months, depending on how extensive the clotting was. When she next sees her doctor she should be able to get some idea of what he's thinking in terms of her treatment if she asks.
I hope your daughter's recovery goes well, and hopefully as she feels better she may be able to get on the group here too. There is a lot of excellent support and help here, from people who are both new to this situation and those with more experience.
There's a lot of antiquated thinking out there about how you can't eat this or that. It's really more about consistency.
For me, I eat generally what I want to eat, not so much restricting, but rather trying to be consistent with my diet. So if your daughter eats a lot of veggies, she should continue to do that. That way, they can get her warfarin dosage in line with her diet so that her INR is therapeutic.
Also, I am on warfarin for life, due to having two separate clotting events.
I'm also a warfarin lifer ... but I've had three separate clotting events. (The first was when I was 30!) I don't think one clotting event generally dictates a lifetime on warfarin, but it depends on the circumstances, cause, and the patient. Most of us didn't become lifers until two or more events.
Best wishes to your daughter! I would also encourage her to stop by. I've found this site pivotal to my recovery!
For me the hardest part is the consistency. Yes, I agree with eating whatever you want. But what about the times when you want to order the spinach salad off the menu because you haven't had a spinach salad in a while?
If I have endulged in the green, leafy veggies in a larger than normal quantity my doc said that I can up my warfarin dose by .5 mg that day. This has worked at keeping me within range for the past couple months.
http://www.drgourmet.com/warfarin/
http://www.clotcare.com/vitaminkandwarfarin.aspx
The key is consistency.