I can't say that I personally have, but I know lots of folks on these boards have had trouble with weight (either up or down) after a clotting event.

For patients who were put on warfarin, they're ofter given the advice to cut out foods with vitamin K, which often results in them eating less salads and other veggies. Hence, weight gain.

Also, I think many times our bodies have a really hard time adjusting after such a shock as clots. It can be hard wrapping our minds around the trauma and I don't think our physical bodies are any different. Loss of appetite could fit right in with that. You might give yourself a little more time to adjust and start getting back to "normal."

I mean, if you're in a situation of getting dangerously underweight, you might check in with your doctor and seek some guidance. Otherwise, I think I might give it another couple of months and see if the dynamic starts to shift.

Thanks, Toss. I have been overweight my whole life. About 3 years ago I finally took off the excess weight. Now I'm bordering on being underweight. This is not a problem I am familiar with. My husband thinks I should be recovering faster. I think he's putting a lot of pressure on me. I'm still very tired and sleep a lot. Also coughing up some brown (old) blood.

I lost my appetite for about a month. I'm on coumadin.

I experienced loss of appetite and weigh loss post diagnosis with PE. They also thought I had pneumonia,but my doc thinks it was an inflammatory response to the damage done by the infarcts in both lungs.Anyway, I felt really crummy, and I had to make myself eat. My appetite picked up in a couple of months, and at about four months out, it came roaring back. Now, at almost seven months out, I've gained back every pound I lost, not that I wanted to, but my weight has just naturally gone back to it's previous level. One thing I did when my appetite was low, was try to eat more protein. After PE, there's a lot of healing going on. I'm not much of a meat eater, but I kind of craved it for a while. Also, upped my fish intake.

You're only about six weeks out at this point, so it sounds like your recovery is moving at about the speed I'd expect.

I think even people who "bounce back" from PEs will be a little behind for 2-3 months. For most of us, based entirely on what I've seen here, recovery tends to stretch out for many months. I mean, you don't feel awful that whole time, but you'll definitely have good days and bad days, with the bade days slowly decreasing.

For me, I took about 11 months to really get past the early stages of recovery. Up until then, getting too much exercise, pushing myself too much, being out in hot/cold/humid weather, breathing cleaning fumes, would all cause problems and I'd have increased pain and exhaustion for a few days. I could usually sleep it off in a day or two but I was exhausted at first.

My PEs were at the end of January in 2010 and I know my last increase of symptoms was on Thanksgiving Day when I went out for a walk in sub-freezing temperatures. Totally exhausted afterwards but sleep cured it.

If there's a way to politely tell your husband to take a chill pill, that might be a good thing. I know my husband got frustrated after a while too and wanted to know if I was always going to be this tired, exhausted person. I didn't know ... and of course a doctor can't guess with any accuracy how long recovery will take. Everyone is different and every clot is different. It takes what it takes and, truthfully, stressing out about it or pushing yourself to get back to "normal" will usually just set you back. This is one recovery where "pushing through it" will just make everything worse.

Hang in there!

Pre-PE I was able to eat a Taco 12 Pack from Taco Bell on my own (not healthy, but to give you an idea of my capacity). Post-PE, for about a month and a half, I could barely eat one single waffle. Needless to say, I lost about 20 pounds because I was never hungry and had absolutely zero appetite. Eventually I started eating more and more by getting the kid's meals from McDonalds, small enough portions now with apples and juice to keep me at least a little healthy. I was diagnosed in April, so I've come back full-swing since then (even gained a bit more weight than I wanted to with the holidays). But yes, I definitely experienced this!

My PE was in Sept and I lost my appetite for a little over a month. It started in the hospital and extended to even when it got home. I still ended up gaining weight overall because I has limited activity due to a cast on my leg. My guy also acted a bit different than I would have expected during my recovery as he is usually a very compassionate person. I think it is a scare for the loved ones too and they want the reassurance of everything being back to normal as quickly as possible. I went back to work full time two weeks after the hospital, which helped take my mind off all the weird pains associated with recovery, but it also took 100% of my strength. I needed to sleep a LOT. Far more than my usual amount...that was true for about 3 months post PE. Right around the 3 month mark (which was early Dec) I suddenly started feeling much better and now I am back to my daily 3 miles walks and not so tired. But if I work all day and then go do something afterwards, even if it is a casual dinner with my guy, then I am dead tired and ready to go to bed. It all just takes awhile. Hang in there and here is to good health in the New Year!

Sorry for all of the typos...shouldn't be trying to do so many things at once...always shameful for an English major :P

I've also had a reduction in appetite since leaving the hospital. My clot was 7/14/14, so I'm nearly at 6 months. I've lost about 15 lbs since leaving the hospital on Xarelto but I'm very overweight so it's a welcomed change. The funny thing is, in an effort to improve my health after being hospitalized, I was counting calories and for more than 2 months stayed below my 1800 calorie goal. In that time I lost like 1-2 lbs but very quickly after that the next 10-13 lbs just disappeared without any changes on my part. Even now I'm usually fine with 2 meals a day. Some nights I have to push myself to eat something so I can take the xarelto. It's very odd.

Oh, I wanted to say my husband pushed me too. He was worried i would turn into a hermit and never leave the house. I explained (or yelled) that I needed to do things at my own pace and he needed to back off. He didn't. But once I got mostly back to normal and the immediate stress and shock of the situation wore off, I emphasized to him that I know myself and my limitations and in the future he needs to allow me to take things more slowly.

Thank you all for your comments. I'm only just beginning, in the last couple of days, to be able to look at a plate of food without mentally gagging. Also thank you to corvid100 for reminding me to eat protein, which I should have remembered. I have been trying to eat every 3-4 hours, even just a protein bar or Greek yogurt, and also drinking lots of water.

I was always fit prior to clotting about 5'9 172.. I lost about 13 lbs during the 6 months but gained back 15 lbs in less than 2 months after therapy was over. I've been eating healthier than ever knowing health is now #1 priority

Yes, when after my PEs, I lost about 25 pounds. I think it was the anxiety and fear of the whole situation and this caused me to change my eating habits. It's amazing what anxiety can do; its the best diet you can go on to lose weight. To be honest, I was about 25 pounds overweight, so it was a good thing that I lost that weight. But yes, I did lose weight right after my diagnosis.

Indwen

My PE was just last week 1/9/15. I am rarely hungry, still struggling with nicotine addiction, recovering from open abdominal surgery, waiting to find out when the NEXT surgery will he scheduled to get this tumor out of me. And I haven't lost a pound-so unfair! I want to get back on the elliptical but I get tired just doing dishes or showering.
Audrey

I have had the opposite problem which I am pretty grumpy about. After my PE I was put on Xarelto and within the first week gained 4lbs and another 2lbs the following week with a total gain of 12lbs in the 15 weeks since my PE. I was 2 weeks post birth when it happened and was very happy at the time to be 21lbs lighter than pre-pregnancy as I had been looking after myself a lot better during the pregnancy and eating great. Then the PE struck and I'm now fighting off the weight whilst not being able to do as much physically as before.

My partner seems to be on the other end of the scale from your husband in that he won't let me do ANYTHING that he deems 'too much' which includes carrying the baby upstairs, cleaning the house too much (can't complain about that one really because it's nice to have someone else do it) or going out walking without him as he's terrified of anything happening.

I don't even think my appetite is really big at the minute but the weight gain is!!