Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
..... on seconds thoughts don't answer that as you'll all say YES :-)
For the last 3 or 4 months my INR has been somewhat wobbly going under and over range (2.0 - 3.0) , my PE's were found on a post chemo CT scan. I have Protein S deficiency and one of the chemo drugs I was on has a listed common side effect of PE. So it's highly likely that my PE was caused by the chemo and helped on by the PSD.
Anyway today my INR was up to 3.2 having climbed up from 1.8 on a dose of 6.5 daily, so today the clinic suggested that I stay on the same dose and test in two weeks, I wasn't happy about this having had my INR climb over the last two weeks so I managed to persuade them to go to 6.0/6.5 and test in a week. The nurse at the clinic said she would rather have me at 3.2 than 1.8, whereas I would rather be closer to 2.0 than 3.0 as I do a lot of sport so am perhaps at a higher risk for getting bumped.
So am I mad for wanting to be closer to 2.0 than 3.0 given that the exercise and keeping well hydrated are good for reducing risk of clots or is the clinic right for wanting to keep nearer 3.0 keeping in mind that they probably don't the full history.
sorry for the long post but don't know why it annoyed me being told to stick to a higher dose, guess I'm more worried by bleeding than I am about getting another clot - mad huh?
For the last 3 or 4 months my INR has been somewhat wobbly going under and over range (2.0 - 3.0) , my PE's were found on a post chemo CT scan. I have Protein S deficiency and one of the chemo drugs I was on has a listed common side effect of PE. So it's highly likely that my PE was caused by the chemo and helped on by the PSD.
Anyway today my INR was up to 3.2 having climbed up from 1.8 on a dose of 6.5 daily, so today the clinic suggested that I stay on the same dose and test in two weeks, I wasn't happy about this having had my INR climb over the last two weeks so I managed to persuade them to go to 6.0/6.5 and test in a week. The nurse at the clinic said she would rather have me at 3.2 than 1.8, whereas I would rather be closer to 2.0 than 3.0 as I do a lot of sport so am perhaps at a higher risk for getting bumped.
So am I mad for wanting to be closer to 2.0 than 3.0 given that the exercise and keeping well hydrated are good for reducing risk of clots or is the clinic right for wanting to keep nearer 3.0 keeping in mind that they probably don't the full history.
sorry for the long post but don't know why it annoyed me being told to stick to a higher dose, guess I'm more worried by bleeding than I am about getting another clot - mad huh?
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
It could have been an odd day for you and your INR may go back down on it's own taking your same dosage of warfarin. They probably don't want to tinker with it too much because they may be looking for an INR trend vs a quick dosage change to correct what may be just an off INR day. I probably would have remained on my normal dose and then asked to be tested in a week vs two. But again, that's just me. You have to do what you're comfortable with.
My opinion, higher than lower, no question. A higher INR can come down without fear of a second episode, but a lower INR can cause to many complications. As far as sports, just play and be smart, can't quit living.
It sounds like you have been through a lot, hang in there.
Somehow the side effects and general feelings of the rat poison fit best when I am active, on a steady daily dose, with INR around 2.3 to 2.8. I am hoping that the summer activity level will keep me around that range, like last year.
Hugs
Ferr
I am trying the real coumadin this month-costs a lot more-like $50 instead of $8. I was thinking that I maybe I felt a little less fatigued this past couple of days, but I had acupuncture a week ago, and I am takung a breathing retraining clas that I think is helping me. I understand your situation, and think that your plan is right for you, especially since Tom -retired navy_ is on a low dose program and doing well -I think targetis 1.5. Tom, correct me if I am misinforming. Blessings, Teri
My body doesn't seem to do well with an INR above a 3.0 You can say it is the placebo effect, but I have really noticed a difference in the last two weeks since my INR's have always been very consistent, but they increased by a big jump when I went on the antibiotics for an infection (Keflex which is not supposed to effect coumedin, but nothing else changed)
Also..... I'm sure you hemo/oncologist has told you that when your body has cancer.... then you have a higher chance of clotting. It's not always from the chemo, but from the body having cancer. You may have already discussed this since I've been away for a few months. So, in my humble opinion- you are NOT crazy! :) I am very blessed to have a hemotologist who is very patient with my ongoing need to get my INR checked. In the last ten months since my PE.... I have gone for 3 weeks at a time, but since on the extra meds- I've been tested almost every 4-5 days (I don't want to have internal bleeding, but I want to go below 2.0) I know..... I must be the one who is crazy!!