Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
cave76
How an individual decides to manage their INR level is between them and their doctor.
Some manage INR by changing the dose of warfarin, which is one way and is used by many people; of course a doctor or nurse should be consulted.
Another way is to control a slightly higher or lower INR is by the amount of Vit K foods eaten: Of course with the consent of a doctor or coag-nurse, especially for newcomers with PE's.
There's some misconception about how Vit K works for or against an slightly out of range INR.
Simply put---- and ONLY if there are no other changed circumstances, like different supplements, illness, different drugs and other changes in the patient-----
More Vit K veggies will lower your INR
Less Vit K veggies will raise it.
***How does what I eat affect warfarin?
Foods that are high in vitamin K can affect the way warfarin works in your body. Vitamin K helps your blood clot and works against warfarin.
The more vitamin K-rich foods you eat, the lower the levels of warfarin in your body. This means your INR will be lower, and you will be more likely to form a blood clot.****
http://www.pamf.org/anticoag/patients/handouts/Warfarin_and_Diet.pdf
In case a newbie is reading this----Consistency is the key. Check with your doctor---- if he or she wants you to control your INR by changing your dose of warfarin---- great. It's a valid way.
I'm able to control any slight change in INR up or down via Vit K intake. It's a choice we all have WITH A DOCTOR ON BOARD.
Some manage INR by changing the dose of warfarin, which is one way and is used by many people; of course a doctor or nurse should be consulted.
Another way is to control a slightly higher or lower INR is by the amount of Vit K foods eaten: Of course with the consent of a doctor or coag-nurse, especially for newcomers with PE's.
There's some misconception about how Vit K works for or against an slightly out of range INR.
Simply put---- and ONLY if there are no other changed circumstances, like different supplements, illness, different drugs and other changes in the patient-----
More Vit K veggies will lower your INR
Less Vit K veggies will raise it.
***How does what I eat affect warfarin?
Foods that are high in vitamin K can affect the way warfarin works in your body. Vitamin K helps your blood clot and works against warfarin.
The more vitamin K-rich foods you eat, the lower the levels of warfarin in your body. This means your INR will be lower, and you will be more likely to form a blood clot.****
http://www.pamf.org/anticoag/patients/handouts/Warfarin_and_Diet.pdf
In case a newbie is reading this----Consistency is the key. Check with your doctor---- if he or she wants you to control your INR by changing your dose of warfarin---- great. It's a valid way.
I'm able to control any slight change in INR up or down via Vit K intake. It's a choice we all have WITH A DOCTOR ON BOARD.
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
The people who are well-respected on this site are respected because they've put in the time, sometimes not only here, but in other endeavors regarding blood clot awareness, such as Tom has done with the NBCA and other organizations. It's unreasonable to expect to blow into any forum as a new person and immediately become the most respected person in the room, which obviously you want to be. Humility goes a long way, especially when you're new to something and you're up against people with years and years of actual experience. Part of what's great about this group is that until you came no one set him/herself up as the ultimate "authority". We share our experiences to try to help each other.
Then I try to remember to give the urls to those sites so that people can see it's not just my opinion. That's the way I was taught.
Ultimately, the goal of DS is to provide a safe, supportive environment for those of us going through challenging health issues. While I don't think many of Cave's posts support that goal, neither do many of the response posts to Cave's posts.
This is America (well, OK, I know not everyone on this group is in America ... just roll with me on this). We do have freedom of speech. And, ultimately, it is healthy debate that makes the world go round. We don't all have to agree with what Cave is posting, but the personal attacks are starting to make all of us look like bullies ... and that isn't safe OR supportive either.
Everyone take a deep breath and take a step back. I don't agree with the "Fear Factor" behind some of Cave's posts (although he/she/it does add a lot to threads when just posting normal experiences), but I also think many of us are going a little overboard here.
I mean, I like it here (obviously, since I seem to spend most of my waking hours here). But the negative "playground" vibes are getting to me.
I can't control what anyone posts, but we ALL need to be more cautious about what we're posting. If it isn't supportive... If it isn't helpful... if it isn't healthy debate ... then step AWAY from the keyboard. That goes for me, that goes for Cave, that goes for all of us.
Seeing this topic brought up again, for no other reason than to push one's own agenda or to make a point, was just too much and people lost their cool, people who normally don't. That is telling, right or wrong.
I wish this hadn't happened, because it detracts from the purpose of this group. But I hope we can move on.
Lastly , there are no victims here so no need for that sentiment. Come on now.
No names mentioned but someone in another thread said s/he was trying to increase INR readings by eating more Vit K foods.
With all things else being equal-----eating more Vit K foods will decrease your INR.
I saw that there had been some confusion/misconceptions about that and started this thread. I can see it angrified some people.
Another thread I started was an indirect way to present some information that may or may not have been pertinent to a query by a member. I did that by starting a new thread NOT by addressing that member directly and in the hope that it might be read and thought about and then discussed with a doctor.
I don't possess the hubris to believe that I have all the answers. But I do hope that people might use some of my references as a jumping off point for their own research or to talk over with their doctor.
So there are some misconceptions about the reasons behind some of my posts.
Stop posting about this and let it die
And again, you're well within your right to just simply say that for you it seems to work to change your vit K intake if you need changes in your INR. You apparetly are expecially sensitive to warfarin, as you've mentioned before you are on a low dose. But then I, for instance, have every right to counter that while that works for you, someone else might want to think twice and be sure to talk to their doctor, because if you limit your vit K intake, you will very likely suffer collateral damage of depriving yourself of other vitamins and minerals that are also present in vit K-heavy food. Then you can counter back with whatever you like. We're just sharing our experiences here, and of course anyone reading any of this will have to look at all sides and see how they decide to handle it themselves.
I do appreciate the explanation of why you listed this topic yet again, because honestly it seemed to me like you were just trying to bring up what has (oddly) become a hot-button topic so you could become the center of attention again. Because seriously, in more than three years on this site, I've never seen such a heated debate regading vitamin K intake. It's the kind of thing people ask about a lot, there's a simple explanation given, and it's no big deal. This has been very strange.
I'll get back to answer your lengthy post later. But, as happens so often, you said that I referenced Dr. Gourmet and didn't understand what the (!) I entered after his name meant.
If I had entered the word (GACK) after his site I'm sure that a whole gaggle of people who just love him would descend upon me and I'd get even more hate mail. (inserting smiling emoticon here)
So, we've met on a common ground: you don't like his site and neither do I. I call that progress.
Yes, it's certainly a hot spot. Make even more 'hot' by the people who respond. I think that is a telling point---- people are even more interested in Vit K pros and cons than previously thought.
Catch ya later.
***the newbies just need it as simple as they can***
I think you're not giving newbies enough credit for their ability to think for themselves.
Actually what you probably meant was that newbies need to hear just one version (yours?) I mean no disrespect.
Yes, some foods, not even neccessarily vitamin K food can affect that INR.
Doctor's seem to perpetuate the thought that NO VITAMIN K is the way to go, when in fact a lot of us each it every day.
The key is consistency.
If you're eating a bowl of spinach every day, then continue to do it. If you're not eating a bowl of it every day, then don't suddenly start.
There isn't much more to it than that, I guess in my opinion.
****Doctor's seem to perpetuate the thought that NO VITAMIN K is the way to go****
I haven't found that to be true, myself. But I h
----- but I have seen people misinterpret what the doctors and sites say.
But if you have specific knowledge of a doctor or a site that does say that I think it would be helpful to post that information here on the board.
In fact, I just saw a strange entry yesterday on a web site that was talking about what foods have Vit K in them. It said that ONLY green LEAFY vegetables have Vit K. (Guffaw)
So what about cauliflower, for just one? (giggle)