Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
Hello, I am Ayla, and I am new to this site, just thought I would introduce myself so we could get to know each other.
I'm 47, and for reasons unknown to modern medicine, I tend to get Pulmonary embolisms. I have had them at least five times that we are aware of. I have recently been told that I will have to be on Coumadin for the rest of my life. I don't know much about PE, but I am sure that I can learn a lot from you all. All I know is that I have to take my meds, and get my blood drawn every week. And watch for symptoms of more PEs.
I look forward to hearing from you all, and meeting you. I also look forward to learning more from you as well.
Most Sincerely,
Ayla
I'm 47, and for reasons unknown to modern medicine, I tend to get Pulmonary embolisms. I have had them at least five times that we are aware of. I have recently been told that I will have to be on Coumadin for the rest of my life. I don't know much about PE, but I am sure that I can learn a lot from you all. All I know is that I have to take my meds, and get my blood drawn every week. And watch for symptoms of more PEs.
I look forward to hearing from you all, and meeting you. I also look forward to learning more from you as well.
Most Sincerely,
Ayla
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Look at what my best friend did with my picture!
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We all have 24 hours in a day. How we spend these hours is important. Watching a little bit of a video about how sitting affects us made me aware of how much sitting and laying down I do. Gonna have to work on that.Your turn. Tell me another truth.
Mike
You've had 5 separate clotting events and they're just NOW keeping you on coumadin for the rest of your life? Usually, after a second clotting event they recommend long term coumadin Glad you are ok!
There are several of us here who've had more than one clotting event with no definitive explanations, so know you're not alone in that. I assume you've seen a Hematologist and have been tested for genetic clotting disorders.
One thing. I noticed on your profile you have a couple of different medical conditions. Note that some inflammatory diseases and autoimmune diseases can increase your risk for blood clots. So it may be a couple of risk factors that you have that may be not necessarily be the direct reason for your clots, but just have made you more prone to clotting.
So yeah, like you said, you take your meds, get your INR tested as needed, be mindful of symptoms and live your best life!
I'm also surprised that you've just now become a lifer on coumadin. Usually they do that after your second (or third, in my case) clotting episode. Sounds like you're a resilient gal!
As a lifer, you could consider getting a home monitor for your INR, so you don't have to go to the lab every week. It does make life a little bit easier and might be worth checking with your doctor to see what he/she thinks.
and be your cheering section when you might be feeling down.
Hugs Ferr
I am also a lifer. Only diagnosed with PEs once and they couldn't find the source of the clot. Found out I am Factor V Leiden positive, so am now a lifer.
Welcome to club no one wants to belong to!