Well if it would happen to be a clot, at least you're on the meds again. Any chance you're hyper focused on your lungs and your breathing because you're anxious about having been if anticoagulants?

I was breathing weird because it hurt to take deep breaths after the biopsy so that could be it.

I hope you feel better. I also have APS with high titers of the antibodies. I'm scared to death to have elective surgeries. My pain management doc wants to implant the spinal cord stimulator into me and I'm worried about the 10 day Lovenox Bridge before and after the surgery. That bridge period leaves you vulnerable to clotting events. I hope that your chest pain is only some anxiety, but if not, now you know you have to be very careful about stopping blood thinners in the future. You should be fine now that you're back on the Lovenox and Warfarin. Hugs my friend.

Jeremy, is yours primary or secondary aps? Mines secondary to lupus but I have all three antibodies in high amounts.

I think mine is primary APS. I have the Lupus Anticoagulant and 98 positive for the Anti-Beta 2 Glycoprotein Antibodies. I was just tested for Lupus the Disease through the Sedimentation Rate, Anti-Nuclear DNA, DSDNA, and some other tests. All of them came back normal. I think that pretty much rules out SLE. Did they have to do a biopsy on you for your Lupus? I know with having all three Antibodies and in high titers, you are at a high risk of clotting up again. I am high risk because I have possibly two of the Antibodies (the Lupus Anticoagulant cannot be confirmed for me because I'm on blood thinners) but the Anti-Beta 2 as been a high titer in my blood for over two years now. I also have a damaged vein in my leg that puts me at an extremely high risk of developing another DVT despite the APS diagnosis. Like I said, APS is a pretty nasty diagnosis. Are you feeling better?

I read that the Anticardioliphin Antibodies have more to do with Systematic Lupus erythematosus. Also SLE tends to negatively affect the kidneys. Have your APS Antibody levels gone down since you started taking Plaquenil? I was trying to ask the Rheumatologist about Plaquenil, but he said my disease is not autoimmune. He said it needs to be treated by the Hematologist. I hope your biopsy results are all good and you feel better.

I take plaquenil among many other medications. I have lupus nephritis so the biopsy was to classify it. Not a fun thing to go through. I have good days and bad days and by bad days I mean anxiety. So far, I don't have the debilitating pain that many people with lupus have...knock on wood it stays that way. I should be more active but it's hard to do things with all of the school work. That's a big stressed is school. Luckily it's my last semester so after December I can finally relax and recharge my body and hopefully just focus on my health and taking care of myself. How long have you had aps?

I was just diagnosed with APS a few months ago. I've probably had it for years and never connected the dots. Looking back I might have had some of the signs and symptoms dating back to when I was a teenager. At least we know what we have, what we're facing, and how to prevent complications in the future. We're both luck to have a solid diagnosis being so young. Some people have APS and Lupus and are seronegative (meaning that the antibodies do not show up on blood tests but they continue o experience symptoms of the disease) for years before they receive a diagnosis. Early treatment is the key in preventing complications. The Plaquenil is going to really slow down, and might even put your Lupus into remission.

Sadly, plauqenil hasn't really helped me like everyone says it should. I'm still fatigued and sometimes joint pain and it didn't prevent kidney damage from anti dsdna like it was supposed to. I'm now on cellcept and could be on prednisone here soon depending on my biopsy results. Like you said, at least we're young and being treated.

How long ago was the clot? I had my 2nd PE in January. I had continuing SOB with a couple ED visits. I had a 2nd CT around March and it was still present. I had a 3rd CT around September and it showed residual clots. My swim time in the pool is right where it was before, always looking to extend it.