Great update! Honestly, I think those little nagging thoughts of clotting will always be part of us, but the game changer is that, with time, they don't rule our thinking. Glad you're doing so well.

Really glad to hear from you! Sounds like you're living the good life. Trying to be "smart and to be in control while not letter it control my life" is sometimes all any of us can aim for.

Hey Daffnae, this is so encouraging. I am glad you are feeling good again !!!

I too sometimes wonder if my life would go back to being normal again. I am 1 year and 2 months out. I am trying to return to my activity level again, which is sometimes frustrating and sometimes rewarding. I saw your post on the DVT board and then came directly to the PE board to read this post. Now I am so encouraged that if I am patient and work on it, I too will have my own norm : )

Ava

It's nice to hear that things are going so well for you Daffnae. Definitely life gets to a new normal, but that's not always a bad thing either, it's just different than before. Thanks for writing to encourage everyone who's earlier in the process of recovery. And wishing you continued good health! (Except for the tailbone thing, ouch! Feel better soon from that.)

Daffnae, are you still on anti-coagulants? For those who remain on anti-coagulants, there may be a "new" normal.

Thanks for the responses! I only did 6 months on warfarin, and now I take aspirin daily.

I'm on warfarin long term and at first I had that new normal thinking, but really I do feel as normal as I felt before the PE. I feel myself, and not much has really significantly changed in my life.

hi Daffnae

thanks for this message. I was admitted to hospital with my PE in March 2014. I'm still very new at this and I have been affected by this, because I was knocking on deaths door when I was in hospital. it's comforting to know that my fears about clotting at this stage are experienced by other as well.

I thought I was doing ok, I am 2 months out. My pain was just an achy pain for a while, now it hurts bad again. I had a stat Doppler on my right leg and the clot is still a good size. I noticed I am getting out of breath again too. The Doc. Just kept me on Xarelto 20mg and sent me home. I was hospitalized for a week in April. have any of you experienced this??

@Neecee6

I think it is pretty normal to have wild fluctuations in how you are feeling during recovery. For example, I felt much worse at about five weeks out than I did when I was diagnosed. I even had a repeat CT because of the symptoms and it turned out my clots were totally gone. For the most part, I was just pushing myself too hard to get back to "normal" and when I slowed down and gave myself some time to rest and relax, I usually started to feel better within a couple of days.

For me, I had bouts of increased pain, SOB, and exhaustion on and off up until about 11 months out. They got less frequent and less severe over time, but it was still hard to be feeling like you're doing pretty well and then wind up on the couch for a few days feeling awful.

I'm glad you got checked out! Try taking it easy for a couple of days and see if that helps. Could be that you're just trying to do too much, too soon and your lungs are fighting back.

Neecee6..I was on xarelto for a few months..then went off it onto an aspirin regime. I noticed 2 days ago my left ankle started to hurt..that'swhat happened before for aabout 2 weeks before a bump in my lower leg appeared. So..I started back today on it..20mg a day. I have gained weight and not walking. So I am starting back walking and dieting. Hopefully after a month..I can get healthier by cutting out sugar..eating right

Some time we are after long time back to normal life because that time we are not leave normal life for some critical condition. so we are more required time recover for this situation.

Thanks for the update and glad you are doing well.

I have been having a few mild chest pains but no SOB,etc with it the last few days. I think it is most likely related to all the running around I have done with the girls this summer and not resting at times like I need to or should still. I am 13 months post PE/DVT's and for the most part doing pretty good.

I do notice that on days where the humidity is up or it is really hot, it does bother my breathing. Those are the days I try to hide out inside under the AC as much as possible.

I think I am also getting to a new normal like you but still experience a few bumps in the road off and on. Hope your tailbone heals quickly!