Hey Lisa it's so good to hear from you. I'm so glad you're doing well! And you know, it's important for people here to see that you can go off warfarin and not clot! What a beautiful gift to give!

What a wonderful post! SO glad you checked in with us and let us know that there IS life after PE. I'm delighted that you're doing so well!

Thank you rmb and TossNTurn. You two ladies will never know just how much you both helped me during my recovery. It has been a crazy ride, and I thank God that I found this support group. :)

I'm so happy to hear this post from you! I am first of all extremely happy for you and it's wonderful to hear that things are going so well. Second, I think that your post will help a lot of people, since at the moment we seem to have so many who are plagued by anxiety of both the experience itself, then anxiety as they start to recover and get back to normal life off anticoagulants - so many are afraid to some off. It's wonderful to hear an example like yours because although those of us who are multiple clotters say - Hey we're in the minority - we so infrequently hear back from those of you who have recovered and are doing well.

Really so happy for you, I hope things keep getting even better!

Thank you so much for your post! I have been off warfarin now for 3.5 months, and am one of those who is still struggling with anxiety, exhaustion, and fear of another clot! I'm so glad to hear from someone who is still clot free after 2 years! Congratulations! I hope I can post the same thing at my 2 year mark! :)

Thank you for posting this! I was just hoping someone would post how they were a couple years out. I'm almost 3 months post PE & have been having anxiety & worried about getting another clot.
They think mine was from birth control but I will have the genetic testing after 6 months & hopefully come off of coumadin! This gives ms hope that it was just the bc.
I'm so happy for you & thanks for sharing!

I had an unprovoked PE and hope to get off therapy after 6 months but my doc is overly cautious because no apparent reason. What caused your doc to take you off and what in detail are you doing diet, supplement, exercise, testing wise to stay safe. I want off the "rat poison" if I can manage the risk effectively.

Thank you all for your kind words. I wish that everyone diagnosed with PE would find this on line support group.

@ Cubbie - My doctors took me off warfarin after having been on it for 6 months. They knew that 5 weeks prior to my PE diagnosis I had been on birth control pills for a month, so they had a theory that the hormones caused my clotting. After coming off of the warfarin they did the clotting disorder testing (although some of the disorders can be detected while you are on blood thinners).

Now that I am off of blood thinners, my doctor has me take a baby aspirin everyday. I also take a B vitamin complex supplement, simply because during my PE recovery it was discovered that I had a B-12 deficiency. (that's a whole other story!!)

My heart and lung function tests were all normal so I no longer see a pulmonologist. I see my primary care doctor yearly and he runs the standard blood panel tests.

As far as diet and exercise goes, I eat healthier now than I ever did before. The PE's made me aware of how vulnerable and how strong my body is. I eat whole foods now, very rarely do I eat processed foods. This is just my choice. The doctors didn't tell me to, it just makes me feel better. I make a conscience effort to stay hydrated. I drink a lot of water. And for exercise, I try to walk each morning a couple of miles.

Cubbie, I wish you all the best in your recovery. Getting answers to our questions is a mission that each of us undertake when we are going through this. I am so glad you found this support group. :) Take good care of yourself.

Hi Lisa,

It''s good to hear that people do come out of the other side of this! Keeps me positive that hopefully things will improve for me. Glad to hear you're doing well.

Thank you so much, this is what I needed to see right now. There are a good few of us here who have just stopped warfarin and the anxiety monster is lurking around us big time. I keep thinking back to that song - what doesn't kill you makes you stronger!

I am also grateful for your post! I had my DVT/PE events in Aug. 2011 and am just coming up on 5 months post Coumadin. I take 2 baby aspirin a day, stay well hydrated, compression hose, frequent exercise and am very focused on eating healthy. I wish I didn't have a mild clotting disorder (Prothrombin Factor II), since that keeps me thinking about blood clots too much. But the docs are looking at the Yazz birth control I was on too. I try to relax and enjoy being off the Coumadin as much as I possibly can. Keep encouraging us!

Hi,well love been off warfrin for 2 months now,at first l was scared but am getting better,not so anxious now, l have been sleeping without lorazapam continually for a week, feels good to not have so much anxiety,now l want to focus on getting more fit, since l was off work for.5 months,went back in Oct 15 half days,now lm doing 6 hrs.by Dec,15 l think I'll do full days,glad tobe back to normal life, and more free of anxiety, a few weeks ago l was having problems with my right eye, got tested and am getting a field test, but opthomologist thinks it will be clear, l think stress and anxiety just getting back to work caused this problem, well I'll see by the 10 the of Dec.all the best to my fellow clotters, my pe was caused by surgery trauma plus estrodot, they think , so lm not a lifer,just can't take estrogen anymore,well have a nice day all, that was a good story to hear of your health 2 yrs out,thank you!!!

Meant to say8.5 months