Pulmonary Embolism Support Group

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.

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2.5 years after massive DVT/PE

faredtsbc
faredtsbc

Hello everyone


Hope all are doing well..


Here is my profile and my concern follows it:


I had a massive DVT/PE (as my doctor described it). No obvious reason after all tests have been done. I chose to do a surgery to remove the clot and the results were amazing concerning the DVT. My doctor put me on xarelto, I took it for 10 months and quit taking it myself and I did not follow up with my doctor ever since (I did not mind dying at that time). Now, since two days ago I am having a bloody caugh sometimes. I do not know if that kind of normal for someone living with PE. So I am looking for your experience and insights please.


Be safe all...

rmb
rmb
No, I don't consider coughing up blood 2.5 years after diagnosis to be normal.
TossNTurn
TossNTurn
Agree with rmb. After 2.5 years, there's no reason to assume that you still have PEs at all ... and I would expect that most damage caused by the PEs would be healed by now. Bloody cough is not normal at this point at all.
faredtsbc
faredtsbc
Thank you all for advising. Just one thing to clarify, what I meant by coughing blood was not that I had to cough, I did cough intentionally because I saw some blood. However, this just happened for two days in the morning only when I wake up.
notsopatient
notsopatient
To the doctor!
rmb
rmb
Maybe it's blood from your nose draining down the back if your throught. I get that when the air is dry. But yeah, I still say it's not normal in relation to your past PE. I think if you're concerned, just see your doc.
ColoradoPE
ColoradoPE
I was told to return to the ER if I coughed up blood. You shouldn't hesitate to get checked for another PE.
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