Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Hey all, been gone 4 a while....Been through so much I really don't know where to start. In Feb. I had a vp shunt placed within a month it clogged off. My ns decided to wait and see if it would corrected itself and of course it never did, So in Aug. he replaced with a different type, one that was supposedly fit for people with smaller ventricles(which is the case for me) .By my 2 wk appt the newer shunt clogged off as well. So the ns decided an lp shunt would be better for me... Oh, what an experience. He took the vp out and placed an lp in. So, So painful, but I think I've healed pretty well until a couple of hours ago I started experiencing alot of pressure in my lower back when ever I get up(sitting/standing). I'm so worried. I don't know if anyone can relate, but the pain feels like back contractions or pressure I felt once during a blood patch as the dr tried to squeeze as much blood as he could down my spine to make sure he covered any leaking holes. If anyone has experienced anything like this please tell me what could be going on. I'm afraid of getting cut again and am really exhausted with this whole process.
deleted_user
I just had an LP shunt placed about a week ago. From the instant I woke up I have had the worst headaches of my life. I cant stay in an upright position for very long and if I sneeze forget about it. that pain is so great I cry. I am scared that my shunt is over draining and no one is listening to me. The headaches I had before this shunt were bubble gum compared to what I am dealing with now. My NS seems like a non compassionate jerk. How can it be proved if my shunt is over draining??? The pain in my back is a pain I can tolorate but the pain in my head makes me want to die. I just read a post from this poor young girl who has been through so much and her NS dismissed her from his practice for complaining too much. I couldnt believe it. All I know is I am scared also about this shunt and Im with you in not knowing what to do now.
deleted_user
I just had an LP shunt placed about a week ago. From the instant I woke up I have had the worst headaches of my life. I cant stay in an upright position for very long and if I sneeze forget about it. that pain is so great I cry. I am scared that my shunt is over draining and no one is listening to me. The headaches I had before this shunt were bubble gum compared to what I am dealing with now. My NS seems like a non compassionate jerk. How can it be proved if my shunt is over draining??? The pain in my back is a pain I can tolorate but the pain in my head makes me want to die. I just read a post from this poor young girl who has been through so much and her NS dismissed her from his practice for complaining too much. I couldnt believe it. All I know is I am scared also about this shunt and Im with you in not knowing what to do now.
deleted_user
I just had an LP shunt placed about a week ago. From the instant I woke up I have had the worst headaches of my life. I cant stay in an upright position for very long and if I sneeze forget about it. that pain is so great I cry. I am scared that my shunt is over draining and no one is listening to me. The headaches I had before this shunt were bubble gum compared to what I am dealing with now. My NS seems like a non compassionate jerk. How can it be proved if my shunt is over draining??? The pain in my back is a pain I can tolorate but the pain in my head makes me want to die. I just read a post from this poor young girl who has been through so much and her NS dismissed her from his practice for complaining too much. I couldnt believe it. All I know is I am scared also about this shunt and Im with you in not knowing what to do now.
deleted_user
I just had an LP shunt placed about a week ago. From the instant I woke up I have had the worst headaches of my life. I cant stay in an upright position for very long and if I sneeze forget about it. that pain is so great I cry. I am scared that my shunt is over draining and no one is listening to me. The headaches I had before this shunt were bubble gum compared to what I am dealing with now. My NS seems like a non compassionate jerk. How can it be proved if my shunt is over draining??? The pain in my back is a pain I can tolorate but the pain in my head makes me want to die. I just read a post from this poor young girl who has been through so much and her NS dismissed her from his practice for complaining too much. I couldnt believe it. All I know is I am scared also about this shunt and Im with you in not knowing what to do now.
deleted_user
I just had an LP shunt placed about a week ago. From the instant I woke up I have had the worst headaches of my life. I cant stay in an upright position for very long and if I sneeze forget about it. that pain is so great I cry. I am scared that my shunt is over draining and no one is listening to me. The headaches I had before this shunt were bubble gum compared to what I am dealing with now. My NS seems like a non compassionate jerk. How can it be proved if my shunt is over draining??? The pain in my back is a pain I can tolorate but the pain in my head makes me want to die. I just read a post from this poor young girl who has been through so much and her NS dismissed her from his practice for complaining too much. I couldnt believe it. All I know is I am scared also about this shunt and Im with you in not knowing what to do now.
deleted_user
I just had an LP shunt placed about a week ago. From the instant I woke up I have had the worst headaches of my life. I cant stay in an upright position for very long and if I sneeze forget about it. that pain is so great I cry. I am scared that my shunt is over draining and no one is listening to me. The headaches I had before this shunt were bubble gum compared to what I am dealing with now. My NS seems like a non compassionate jerk. How can it be proved if my shunt is over draining??? The pain in my back is a pain I can tolorate but the pain in my head makes me want to die. I just read a post from this poor young girl who has been through so much and her NS dismissed her from his practice for complaining too much. I couldnt believe it. All I know is I am scared also about this shunt and Im with you in not knowing what to do now.
deleted_user
I just had an LP shunt placed about a week ago. From the instant I woke up I have had the worst headaches of my life. I cant stay in an upright position for very long and if I sneeze forget about it. that pain is so great I cry. I am scared that my shunt is over draining and no one is listening to me. The headaches I had before this shunt were bubble gum compared to what I am dealing with now. My NS seems like a non compassionate jerk. How can it be proved if my shunt is over draining??? The pain in my back is a pain I can tolorate but the pain in my head makes me want to die. I just read a post from this poor young girl who has been through so much and her NS dismissed her from his practice for complaining too much. I couldnt believe it. All I know is I am scared also about this shunt and Im with you in not knowing what to do now.
deleted_user
I just had an LP shunt placed about a week ago. From the instant I woke up I have had the worst headaches of my life. I cant stay in an upright position for very long and if I sneeze forget about it. that pain is so great I cry. I am scared that my shunt is over draining and no one is listening to me. The headaches I had before this shunt were bubble gum compared to what I am dealing with now. My NS seems like a non compassionate jerk. How can it be proved if my shunt is over draining??? The pain in my back is a pain I can tolorate but the pain in my head makes me want to die. I just read a post from this poor young girl who has been through so much and her NS dismissed her from his practice for complaining too much. I couldnt believe it. All I know is I am scared also about this shunt and Im with you in not knowing what to do now.
deleted_user
Wow I just noticed my post showed up about a million times. dont know why lol. sorry bout that.
deleted_user
Wow I just noticed my post showed up about a million times. dont know why lol. sorry bout that.
deleted_user
Wow I just noticed my post showed up about a million times. dont know why lol. sorry bout that.
deleted_user
Wow I just noticed my post showed up about a million times. dont know why lol. sorry bout that.
deleted_user
Wow I just noticed my post showed up about a million times. dont know why lol. sorry bout that.
deleted_user
Wow I just noticed my post showed up about a million times. dont know why lol. sorry bout that.
deleted_user
Wow I just noticed my post showed up about a million times. dont know why lol. sorry bout that.
Join the Conversation