Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
then what? The Dr is saying that my op @ 30 is normal its in different units than they are used to (what those units are IM not
Sure) they are telling me because my visual field is good that the paps are from something else and that the lightning in my eyes is not consistent with paps. I just really want to cry honestly. They are doing a mrv to test for clots and vessels and now want to do a MRI saying its probably crystals behind my eyes. Ive felt a bazillion times better since my lp, I have had energy again, no ear pain, no panic attacks. My paps have gone down since the lp but they are still there. Does anyone have any advice.
Sure) they are telling me because my visual field is good that the paps are from something else and that the lightning in my eyes is not consistent with paps. I just really want to cry honestly. They are doing a mrv to test for clots and vessels and now want to do a MRI saying its probably crystals behind my eyes. Ive felt a bazillion times better since my lp, I have had energy again, no ear pain, no panic attacks. My paps have gone down since the lp but they are still there. Does anyone have any advice.
Call his nurse today if you can and get the med lingo explained to you in terms your comfortable with. That just sounds like a blow off to me. Almost everyone on here with paps has lightening, black floaters, rainbows, visual migraines, blindness, loos of per vision, blurriness, blank spots, etc, etc, etc. What turds doctors can be, I swear.
Mary
The different units are probably centimeters, not millimeters. For example, a measurement in centimeters would be 30, in millimeters it would be 300. still call and ask them, though.
I'm confused. I thought 300 (in mm) was your OP? Later you said it was 70 (in mm). Below 200 is normal. So if your OP was down to 70 mm, that is normal. Are you sure that wasn't your closing pressure?
You have been on Diamox, right? What was the OP of your first LP, when you were diagnosed? If it went from abnormally high to 70, that just means that the Diamox was working.
I really do get tired of docs jerking people around. It has to be lack of knowlege and education. But if they have a patient with IH you'd think they'd take the time to look stuff up.
Ditto to what everybody else said. ANY way you could get a second opinion would help. Any loopholes you can take advantage of? Is there another neuro in the same practice that you could see (same practice, same billing?)
I found some good info on the CHairi malformation site about OP measurements as lp's are advised againts due to further herniation risks, I found much relief in my LP even though the NS said no way......anyways here ya go.
"Before any fluid is removed, the needle is used to measure the "opening pressure". Although many sources vary on what "normal" CSF pressure should be, most respectable sources seem to agree that normal CSF pressure ranges between 12mmHg and 15mmHg (or, 120mmH2O and 150mmH2O). "
So if he said 70mmH2O then your pressure is way low??????????Or did he mean 700mmH2O????? you should be dead or stroking, maybe some pt's have OP that high, I will get with my g-ma on this, she will know. She neuro nurse.