Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Good morning all! Yesterday, went to 2nd NO for addtl opinion. Still no paps, glaucoma, macular, retina issues. Optic nerves et al healthy per her exam. So, no change from last year. BUT, my vision (peripheral & acuity) are worse and noted as such. 2nd NO agrees with 1st NO from 2013 that my vision loss is Functional. Has now referred me back to Neuro-Psych to retrain my eyes, and Im sure another complete mental health eval (ugh). I asked about my mildly elevated pressure (23 cmH20) and intractable headache(s) in terms of chronic pain inciting functional loss. No answer. Only a mumble about need for more psychiatry. I strongly believe that if my headaches & pressure can be treated properly, the vision loss will abate on its own. My existing and wonderful Psychiatrist agrees.
Ive read that elevated ICP can cause vision disturbance w/o paps, but wonder if anyone else has been told similar about Functional Vision Loss? Any thoughts and/or any links to research tying chronic pain to functional loss?
Thanks smart people!
Ive read that elevated ICP can cause vision disturbance w/o paps, but wonder if anyone else has been told similar about Functional Vision Loss? Any thoughts and/or any links to research tying chronic pain to functional loss?
Thanks smart people!
They seem to have stenting down pat, but I've not been given much info on pressures as a whole. Which seems to contradict the entire premise behind elevated ICP.
Wouldn't there be some evidence of an ischemic event in the optic nerve itself?
i crushed the end of my femur and completely ruptured my ACL - had a hamstring reconstruction of the ACL - several endoscope flushes for floating debris, ended up with grade 4 cartilage degeneration and micro-fracture surgery and ended up needing walking sticks since the age of 30 - too young for a knee replacement tough luck. In the 4 years this all took to happen in the Army I had a lot of pain and a lot of drama as i tried to push myself back to marching and running (lol stupid i know but thats the Army) and needless to say, i spent a fair bit of time crying in doc offices as i faced loosing my career and my mobility at such a young age. but just because you are a girl in the army and you are crying in the doctors office does not mean you have to go on antidepressants.
I once had one Colonel try to section me because i had just got out of hospital after my ACL reconstruction in a full leg cast in Germany - i was doped up to the eye balls but still in masses of pain - i had been stuck in my room for 3 days - no one had been to see me or bring me food, and i had to walk over to the med center to have my dressings changed and it was snowing, and no one would give me a lift. So i set off hobbling but my crutches skidded on the ice and i fell and bashed my leg and this Colonel found me in the common room crying and so he tried to get me sectioned - hysterical woman and all, obviously not fit to be left on her own. I seriously had to go to a medical board with a psychiatrist - who luckily enough wasnt military and understood that people with broken legs, who are in a lot of pain and no-one is helping them are allowed to cry occasionally without needing to be sectioned.
I would have thought civvie doctors would be better, but maybe a crying woman is a crying woman any where :(
Keren, there are just no words to describe how much you've been through (although you've done a nice job of it so far ;) Thank you always for your kind, RATIONAL and sweet thoughts for all of us.
What U is this pressure?
You hang in there!
Hang in there to you too!!