Prolactinoma Support Group
A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. Prolactin stimulates the breast to produce milk during pregnancy. After delivery of the baby, a mother's...
So I live in an area of about ten thousand people in about a 20 mile radius and I have officially met 6 other people who have a pituitary tumor and one of them has a Cushing's tumor and another one is unknown. The others are prolactinomas. These people have either been born and raised here or are from here and live in other towns.
Now I know that these tumors are supposedly like one in 7,000 or something like that so WHY are there so many pituitary tumors in such a small area.
The girl that I talked to today is lactating but was told she was fine and "some women just do that". Her brother has the unknown tumor and is currently getting treatment for it in Seattle.
She told me that it MUST be the potato farming that we have around here and the pesticides that they use.
Her brother was riding his bike down the road one day and was accidently sprayed by a plane flying over. It made their whole family sick and now he has a brain tumor and a pituitary tumor? WHAT THE HELL!!!!!
Now I know that these tumors are supposedly like one in 7,000 or something like that so WHY are there so many pituitary tumors in such a small area.
The girl that I talked to today is lactating but was told she was fine and "some women just do that". Her brother has the unknown tumor and is currently getting treatment for it in Seattle.
She told me that it MUST be the potato farming that we have around here and the pesticides that they use.
Her brother was riding his bike down the road one day and was accidently sprayed by a plane flying over. It made their whole family sick and now he has a brain tumor and a pituitary tumor? WHAT THE HELL!!!!!
I was actually diagnosed with a prolactinoma exactly the same size as yours. I'm glad there's treatment for our condition, allthough I hope it'll improve.
Like many patients probably do, I blamed myself for feeling tired, lacking motivation, feeling depressed etc. I was being told that there basically wasn't any side effects of the condition, or that they didn't know (which is a better answer). Yet they were the same feelings that made me seek medical attention from the sart. It took many years to realize that it was the prolactinoma. After researching and meeting different doctors.
The major problem with prolactinoma treatment is that many doctors know so little about the condition or hardly know anything at all. Some know how to diagnose, and many miss them. Often the way to diagnose is what's counted as symptoms for the condition. In reality there are much more symptoms, but not enough studies. As I said, I originally went to the doctor because of exhaustion, lack of motivation, depression and so on. These are real symptoms for many with prolactinoma, but often totally ignored. Skilled doctors in the field know that it's very real though.
Since I've had my tumor removed, I am staying away from all BPA, parabens and soy as they all are converted into estrogen by the body.
The one thing that I don't understand is how xenoestrogens COULD be a cause but most people who have prolactinomas have "low estrogen", according to doctors? I don't know, but I am DEFINATELY not going to risk it as there is not enough research to suggest otherwise.
I see a neuro endocrinologist in Seattle, WA and was told by her that most people who have prolactinomas "just don't feel right" like they know there is something wrong, but they don't know exactly what. She also said that everybody is different and can experience it in a different way.