Prolactinoma Support Group
A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. Prolactin stimulates the breast to produce milk during pregnancy. After delivery of the baby, a mother's...
I had a pituritary tumor (prolactinoma) for 17 years before it was diagnosed properly. During that 17 years, i suffered with massive headaches, which i put down to having sinus problems, and eye strain, as the pain was at the back of my eyes. Little did I know that the reason for this, was that the tumor was so large, it was pushing up against my optic nerves. My tumor measured 5cmX4cm. My Endo put me on Cabergoline, high dosage to start with to shrink the size, after about 6 months the size had dropped, and the headache become less frequent. I was told that if i didnt get it checked out i wold eventually become blind.
I have been on cabergoline now for over 8 years, and the tumor remains as an empty sac on the MRI's. I have had no side effects from the drug what so ever. But I guess everyone is different, your bodies are different, and medication can effect people in different ways.
To have a doctor that doesnt care, is not going to give you any kind of confidence at all. Have you thought about seeing someone else?