OK, as an update, I just got my bloodwork done after 7 weeks on .5mg of Caber once a week. My prolactin is now down to 11 (from 37). The Dr said I should continue with the .5mg dose for 3 more months and if my prolactin drops below 10, I will need to reduce the dose to either .25mg once a week or .5mg every other week (so basically two pills per month as a maintenance regimen). Energy is up and feeling better and sharper than I have in months. Also, will be doing a follow up MRI in 3 months to check on tumor growth. Hoping it has reduced significantly from the 4mm when I got checked a few months ago. Since I have virtually no side effects from Caber and have responded well to the treatment, I am no longer considering surgery as an option.

Hello. Well it feels good to know you're not alone. I was told I had a pituatery tumor about 13 years ago. I have only had one MRI since then. At that time I was told just take the Medication & I take it from there Now, My Prolatin levels are usually no more then mid 100's without Dostinex.Recently it was 79. I menstruate pretty much every 2 mths because I dont want to take the meds. After I take (Dostinex) within wks I get my period. I am afraid to go get another MRI. I have anxiety as well so I take Xanax. I tend to be a night Owl and I wake up mid afternoon. So I hope it's not teh prolactin. I wish I had this under control fully,but I am afraid of hat Dr's will say.

I just had my 2mm tumor removed at UCSF yesterday and felt well enough to go home last night but they kept me for observation.

Orangejuice, I didn't know they removed tumors this small. Was it mostly because of your complications due to surgery?

firstly dont worry i was exactly the same when i was diagnosed you think shit ive got a tumour in my head i cant have kids im gonna die
well i can tell you i have had my tumour for 15 years and was told i wouldnt be able to have children and have a very healthy happy 11 year old.basically once you are on the right medication try and get cabergoline dostinex rather than bromocriptine side effects are less.your periods will return to normal and there will be nothing to stop you from having kids.then you just get blood tests done every 6 months and have your prolactin,thyroid levels checked and medication adjusted accordingly .as for the weight gain i had the same problem and i think it was depression brought on by the shock diagnosis that i had a tumour.just know with medication you can lead a happy healthy life just as you did before and youll be fine :)

Hi everyone,

Just found this website & it's nice to know I'm not alone now. I was just diagnosed last week with a prolactinoma after a couple years of symptoms that I did nothing about. Luckily both my husband & I are in the medical community so in a matter of a couple days I had my prolactin levels checked (was 138), got an MRI (8mm tumor), saw a neurosurgeon & endocrinologist. I consider myself lucky in that respect after reading stories of people who have to wait months to get an accurate diagnosis. At the same time, it's a complete shock to my system!! I'm about to start cabergoline (maybe tonight... but it's our valentine's dinner & I might drink some wine. probably not the best time to start it?) & I'm wondering what to expect this week. Am I going to be out of commission? Will I be a train wreck w/ side effects? I'm terrified right now because I'm still in shock. Having just an MRI & prolactin levels drawn, it's only just a snapshot of what's really going on. I won't know if it's growing, shrinking, what my prolactin levels are for 3 more months at next MRI & bloodwork. It's just so surreal. I have a tumor in my head!! Really?!?