Post-Traumatic Stress Disorder (PTSD) Support Group
Find support with others who have gone through a traumatic experience. Whether you have chronic or acute PTSD, we are here for you.
I posted here yesterday to prepare for a GI doc appointment Friday to find where my internal bleeding is coming from. But I had to cancel it today because that will have to wait. I'll take the iron pills for the anemia a while longer instead.
Because I got a call from my regular doc saying my MRI last Wednesday didn't show good results. Chronic kidney disease took away my PTSD meds, but it also took away my ability to exercise and gave me neuropathy's nerve damage in my legs instead. Now my spine is degenerating and the MRI shows I have two bulging disks in my lower back.
They hurt and are the reason I walk with a cane at age 56 now. I can't take meds for back pain because, you guessed it, I have chronic kidney damage, which started all of the physical deterioration in the first place. Which came from PTSD meds. Catch 22. If I took any pills for pain, it could put me over the line into dialysis for my kidneys, and then it's a countdown to a kidney transplant or else.
I know that, but I'm getting worn down by the pain. I meditate and do positive thinking and make sure never to miss work. I'm speaking at a church this Sunday. I stay active.
But the pain and not getting relief from it ever is getting to me. I just got over a kidney infection. And getting more medical bad news like today's phone call from my doc is getting old. Sucking up the courage unwitnessed to summon the 3 or 4 hours of wherewithal for face the pain between getting home from work and bedtime alone in the evenings is hard.
Oh, well. I've got to find a way to cope without PTSD meds or pain meds. Just saying.
Because I got a call from my regular doc saying my MRI last Wednesday didn't show good results. Chronic kidney disease took away my PTSD meds, but it also took away my ability to exercise and gave me neuropathy's nerve damage in my legs instead. Now my spine is degenerating and the MRI shows I have two bulging disks in my lower back.
They hurt and are the reason I walk with a cane at age 56 now. I can't take meds for back pain because, you guessed it, I have chronic kidney damage, which started all of the physical deterioration in the first place. Which came from PTSD meds. Catch 22. If I took any pills for pain, it could put me over the line into dialysis for my kidneys, and then it's a countdown to a kidney transplant or else.
I know that, but I'm getting worn down by the pain. I meditate and do positive thinking and make sure never to miss work. I'm speaking at a church this Sunday. I stay active.
But the pain and not getting relief from it ever is getting to me. I just got over a kidney infection. And getting more medical bad news like today's phone call from my doc is getting old. Sucking up the courage unwitnessed to summon the 3 or 4 hours of wherewithal for face the pain between getting home from work and bedtime alone in the evenings is hard.
Oh, well. I've got to find a way to cope without PTSD meds or pain meds. Just saying.
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I haven't written in my diary on my computer since May because I thought that my computer was dying. I got away from writing but my computer is hanging in there. I think that I will start writing in it again. It's so therapeutic.
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First, I hope everyone is doing well, and continuing to fight that good fight! Keep up the great work on yourselves; I'm rooting for all of you!So, I started doing therapy at the beginning of the year, when I was in my most depressed state, but with my therapist, I made big changes and steps in the right direction. But, over a month ago, she couldn't take my insurance anymore, and I had to stop...
You're a very strong person. Like gigglemon said, you are very inspirational with your strength and your wisdom. I hope you feel better. I find meditation can do wonders. *sending positive energy your way*
I hope you were beating a pillow while you were, "Just saying." That blows sulfide bubbles!!! Major reekage.
Still, my faith in you makes me think you will even make it look classy...
I have two spurred vertebrae and at least one totally squashed disc that I know of. My sciatic nerve has been getting more pinched lately, but mostly things are behaving themselves, still.
Whether yoga can help you? That I do not know. You'd have to talk to your doctor, because it may or may not be safe to do.
If you can afford to, go get a massage. They are nice.
I did yoga 15 years and it was very useful for stress and Fibromyalgia pain. i cannot do it now but agree it si worth asking.
otherwise, merely sending support and prayers,a nd hugs.
puuuurrrrrrr
leo
What about a kidney transplant? I know it's not something to look forward to, yet we have a friend who had one and he seems like his old self now as far as I can tell (which isn't very far - spent one evening with him on our last visit to my husband's country). Could it be the best solution for you? Is it feasible?
Yeah, all the yoga recommendations remind me that I used to teach meditation classes in local schools lecturing from the lotus position. Those were the days.
cjpfaz, what you and I are going through is so similar! Sorry for how you're feeling, but it really let me know someone's going through the same thing and I'm not alone.
This morning one of my nursing students at the community college where I teach sent me an email to see how I'm dong, too. So I'm not alone.
Gratitude once again to everybody at DS PTSD.
Dunno your finances, but if you can afford a YMCA membership and they have a heated pool? Even just *floating* in one was immensely helpful for me when I could afford to go to the one in our area. (Only one around here with warm water pool is pricey as heck.) But maybe your doc can tell you about a cheap deal for an intro thing, to try? There's a chain here that does "60 days for 60 dollars) and I've exploited that a few times, ahem....
Just wish I could do more than make lame suggestions, but just know I've tried almost anything legal, and I can function--- and hey, my neurologist even showed me the best places to put ice to help. So that's a chance, too....
Gentlest purrs and validation.
I've tried where I live, in a city of 20,000 2 hours away from any bigger city with a YMCA like that. So far I haven't found access to a heated pool anywhere. My own community college where I teach has one but classes are overscheduled in it such that a time for me's not available.
I'll keep looking. It's been an idea on my horizon for 3 years now, since the beginning of CKD. Just the idea of floating in a heated pool is so, so relaxing to me. Fingers crossed.