Post-Traumatic Stress Disorder (PTSD) Support Group

Find support with others who have gone through a traumatic experience. Whether you have chronic or acute PTSD, we are here for you.

10,132 Members
27,620 Posts
0 Online
Anxiety Disorders
/ Post-Traumatic Stress Disorder (PTSD) Support Group

CKD Pain Day Again From PTSD Meds Overdose

Community Leadermujicaptsd
mujicaptsd

It was one of those days for me to be the king of pain.  Please forgive me if for today I don't comment individually on journals and posts as your CL the way I always do daily.  I had a bad psychiatrist prescribe too much medication for my PTSD nightmares years ago from growing up in a war zone as a missionary kid.  Now I live with CKD (Chronic Kidney Disease) as well as PTSD.  CKD causes oxygen-starved nerves to die in extremities with much neuropathy pain. Ouch.  


Support welcome.  This happens chronically, it seems.  I'm keeping track as to when, and the last time it was this bad was October 3rd, so that's good news.  Hope it takes as long for it to come back next time after I get through this time.


It really helps when y'all assist me through it.

silverlight
silverlight
I'm so sorry,Muji.

It's 4:01 EST so i hope somehow you are sleeping peacefully and wake up pain free.

i will be praying for you.

gentle hugs.
arfie
arfie
steadying support while you recover from another round, muji.

i keep wondering why my chronic pains continue to surprise me when they flare up to new and renewed agonies. i haven't found an answer to that wandering wonder, but. . . hope healing happens here, one round at a time.

easy does it.
Community LeaderLeo
Leo
Puma here to be your cane. Healing purrs and magic soup to you.
Community Leadermujicaptsd
mujicaptsd
Thanks for the support, y'all. The October 3rd flare up took a few days to subside, so this one now seems to be following that pattern. Your support got me through then and it'll get me through now again, too.
rose07042k
rose07042k
So sorry Muji. Understand what you are going through. I have known you to be very strong and praying the pain will become less. Almost each time I write a gratitude you come to my mind. I wish I could make it better for you and everyone on DS
jptexas
jptexas
Muji, a nurse friend of mine once had me keep a pain journal throughout the day. I bought a little 5 x 7 notebook and diligently described the pain, intensity score, what type of pain, what helped what didn't. I then took this to my doctors and was able to get better relief but also tune into my body as to what not to do (says the girl who just way overdid it and re-injured herself ;-/

I am praying you get relief. I'm sure you cannot take anything because of the CKD which makes it even harder. Prayers and Hugs your way.
Community Leadermujicaptsd
mujicaptsd
JP, I do keep a journal like that. It helps me a lot. The day before yesterday was a bad day, so I gave yesterday a real push to see if I couldn't make a difference with it. It hurt, but I did manage to meet my 3km walking goal yesterday after all. It means a lot to me to do that. Doctors gave up on me twice and consigned me to a wheelchair both times, and twice my s/o helped me get up walking again, so I try to sustain my walking daily ;by having that walking distance as my daily goal. What's ironic about that is that her son and her daughter will walk with me daily, but she herself hates exercise, including walking. Ha!
Community Leadermujicaptsd
mujicaptsd
JP, I do keep a journal like that. It helps me a lot. The day before yesterday was a bad day, so I gave yesterday a real push to see if I couldn't make a difference with it. It hurt, but I did manage to meet my 3km walking goal yesterday after all. It means a lot to me to do that. Doctors gave up on me twice and consigned me to a wheelchair both times, and twice my s/o helped me get up walking again, so I try to sustain my walking daily ;by having that walking distance as my daily goal. What's ironic about that is that her son and her daughter will walk with me daily, but she herself hates exercise, including walking. Ha!
lilmissy7
lilmissy7
(((((Mujica))))))
Comming in late with support, I wanted to write under your post last night but was spinning with a migraine .. whew

I very much empathize with neuropathy from my injuries, I hope you’re doing okay as I write this

Sending lots of support, hope & many prayers
Big hugs <3
jptexas
jptexas
Wow, walking 3km on a big pain day. That is amazing! I can't imagine what ckd pain is. I hope you are feeling better.

Wishing you pain free days ahead. !Feliz Navidad!
Community LeaderSunCloudJD
SunCloudJD
Big hug Muji...I'm sorry you're going through such a rough time
I hope that you'll have some comfort and peace soon...xo
Community Leadermujicaptsd
mujicaptsd
Muchas gracias, SunCLoudJD. It's so, so, so good to have YOU back with us. And may your rehab be swift to end your pain, too, my friend.
Community Leadermujicaptsd
mujicaptsd
Yesterday hurt a lot, and so is today. I was telling my s/o this morning what a blessing it was, then, that for 2 days earlier this week I had no CKD neuropathy. It CAN happen. Not today, but I can pray...and be grateful when it happens. :-)
Community Leadermujicaptsd
mujicaptsd
Gracias, y'all. ! I turned the corner on this CKD week-long episode today, so it really did me good virtually somehow. Ha!

I learned that just like the episode of Oct 3rd and following, this one went on for about a week and then passed. It helps to know how long I'll need your support next time.

It also helps to know that there can be nearly two weeks between these episodes. I don't mind having nearly 60 days without this.
Community Leadermujicaptsd
mujicaptsd
Last Tuesday my kidney damage from the bad pdoc's Seroquel overdose that ruined them was so bad I didn't get enough oxygen in my blood to get out of bed all day. :-( No walking, not even in the house.

Yesterday, though, I gritted my teeth hard against the neuropathy pain from my kidney damage and got 3.29km of walking in, surpassing my daily 3km goal so I won't go back in the wheelchair to which I was confined twice this past year. Very proud of myself. :-)
Posts You May Be Interested In
  • GreenEyes727

    Jay Shetty Podcasts

    Posted by: GreenEyes727
    Last Reply: GreenEyes727
    4
    Jay's podcasts are really good.  I watch them on YouTube for free.  Today, I watched his video about motivation.  In fact, I've been watching a few videos on this subject.  Jay gave us an assignment to complete the following sentence:  I am stuck because?  I don't describe myself as stuck, but to finish the sentence, I would say that I am stuck because I am tired.  When I have energy, I do...
  • Sunshinegirl0228

    Comfort items?

    Posted by: Sunshinegirl0228
    Last Reply: Sunshinegirl0228
    8
    Does anyone here have a comfort item you carry with you when you go out? For example this is my doll, Annie, and I've recently been bringing her with me when I run errrands flor have an appointment. Holding her comforts me. I've bought her clothes, crocheted for her, I recently bought a personalized blanket with her name on it.  Just wondering if anyone else has a comfort item.