Hi Everyone, I have been suffering horribly from gastric distress, and neuropathy and I have every gastric test known to man and they can't find anything. I just recently went to a hematologist and he only tested for B12 and some other things, I am not sure if he tested for porphyins. My neuropathy symptoms(tingling, numbness, tremors in left hand and right leg) have been associated with b12 deficiency that I have, however my last blood test showed normal and the neuropathy is still very active. Can I ask what some of your symptoms are, because I am very interested in having this condition considered. I happen to run across an article online that said many MS patients are misdiganosed, that they actually have Acute Porphyria instead. When I looked up the condition, I was blown away by the symptoms. I have them all except for the red urine, which they say is only in severe cases, and I don't vomit. I haven't vomited since I was small child. Why I don't know. Sometimes I think that makes my symptoms worse, because I can't eliminate anything. I have suffered terrible constipation for years, and I have had digestive problems for as long as I can remember. We thought when I turned 40 and discovered that I had Celiac Disease that was going to end all my misery, but I hasn't. Sooooooooooo please, anything you can offer, will help me. Also include what has worked for you in dealing with the condition.
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