Please read my post under New Symptoms. I too am on antibiotics.

Not sure where to find that

which is the worst of two evils...somehow tsking antibiotics for life would not be my answer..just sayn

I have not taken antibiotics for years now I don't take anything but do follow a very strict gluten free diet. If you had a choice of Methotrexate and prednisone vs Antibiotics...ask any pharmacist and they would certainly pick antibiotics!

Well gang, I will certainly think about looking at a Gluten free diet probably sooner than later.
As for antibiotics; whether or not you have a myco-plasma determines why someone might need to try this regimen. This is me by the way. This isn't suppose to be a lifetime deal.
Each of us are trying to find the answers, and some of us believe that getting off of western medicine is the way to go; namely me.
I have tried a product "Adreset" that I know personally can help someone get off of prednisone. I still have a little way to go, but it's close. Adreset gives you energy for those that are lacking in this area by the way.
Back to the gluten free diet; IamLianne, I would be willing to hear what you eat or avoid.
Hi Brandy, How the heck are you girl.
Long time. I recently had ultrasound test done and need to follow up with that. Found a couple areas of concern. So I will be following up shortly.
Talk to you soon,
Rhonda

http://www.mayoclinic.com/health/polymyositis/AN00572
Here is an answer from MayoClinic about The Gluten free diet to cure Polymyositis.
Michael PM

The simple solution is to eliminate gluten for a 4 week period and evaluate how you feel. If you wait for the doctors to suggest it, you may have suffered for an extended period of time unnecessarily

I think that the simple solution is to ask an expert. Maybe a Docror??

Michael PM

Michael, I am not sure why you are so negative. Doctors are resistant to the treatment that cured me. It seems the greater the specialty the more they resist it. I have been asked by the head of Rheumatology how to do the treatment because she had a patient that she could do nothing more for and was dying. They did the treatment and she is alive and well today. What I learned the hard way is there are a lot of politics involved in the system. A Dr who would prescribe steroids and methotrexate needs to be questioned not me.

I think on the contrary. Peopel who are suggesting treatment without a Scientific basis
should be carefull what they are writing here.
Michael PM

There are plenty of scientific evidence and double blind studies that prove antibiotics work for the tre4atment of polymyositis. Not sure why the negativity but the bottom line is....I a cured. My CK is 45 and I would challenge any person who doubts the treatment to a race around the block. I was not willing to knock 20 years off my life by destroying my liver by taking steroids and chemo. One think I have learned over nearly the last two decades of helping people rid themselves of a horrible disease that almost did me in is.....75% of getting better comes from a positive attitude. I don't recall anyone who was negative actually getting better. So, in saying all of this.....whatever works for you works or band-aids it. Please do not give baseless opinions. It could potentially stop someone from getting better. I am only here to help. I don't need this support group as I am fine. I was invited here so people learn alternatives that can well them.

We have to remember that each of us gives our opinion on this site and although we share some of the same problems, each of us is different. What works for one of us will not work for another.
The more information we have about the possibilities of different treatments, the more it may help one of us.

I find it way more disconcerting when someone offers opinions as fact and leaves out critical words like "may".

In either case, when someone offers a comment that makes sense or doesn't, my next step is to start researching online and find what support or controversy exists.

Having been misdiagnosed until I thought my next step was death, I do know one thing and that is, we cannot totally rely on doctors. We have to be our own advocates.

Nobody has a definitive answer for what we are dealing with.
It's all still trial and error, with heavy emphasis on the error.

Good luck and peace to all.

What a beautiful reply. I get sad when I have people so close minded to what saved my life. I went from truly wanting to die to excited to live every day. I do hot yoga classes and can water ski and everything I want to do. Prior to antibiotics, I couldn't brush my hair without exhaustion. I feel so blessed that I found what cured me and feel that I was given the disease to help others get well.

Can we have one scientific evidence that the antibiotic protocol is used to treat and cure Polymyositis.
WE can't get cured from Polymyositis, maybe be in remission.
Being with Polymyositis is bad.False hope is worse.
Michael PM

I've had this disease for 20 years and have been in remission numerous times. Each time I hope the symptoms won't come back, but calling it a cure is no guarantee. Any research I've been able to find re the antibiotic protocol is from the 90's or thereabouts. Also, the results/claims cited are mostly for improvement, not cures. And when I was a patient in Riverside, the supplements being promoted/prescribed were sold by the doctor, plus the lab work was done by a private lab that had to be paid for by the patient--not insurance. Personally, any business that relies on testimonials for proof does not appeal to me. If it works, clinical proof should be available.