Polycystic Kidney Disease (PKD) Support Group
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.
Hello everyone, my name is Norma and I've not been on Daily Strength for quite a while now, probably almost a year. I've been very depressed as my kidney function was dropping fast, a trend had definitely begun and my kidney doctor wanted to begin preparations for dialysis. First of all, I am old, I am almost 70 years old and have lived with PKD and it's symptoms since I was about 38 with brain aneurysums, hernia surgeries, you guys know the drill, I had it all.
My brother also has PKD and he was preparing for a transplant, his GFR was 10 and his creatinine was just over 8. His wife was going to be his donor, but due to health issues, medicare wasn't very interested in using her at all. So she began a quest to find something that would help her husband. little did she know that what she had found increased his kidney function as well as lower his creatinine level down to 2, all of this in a year and a half,
I couldn't help but be impressed, and I wanted to take whatever my brother was taking as well and I did. In just over 4 months my GFR has increased to 45 previously it was 22. Creatinine level was 2.8, it is now 1.4. My kidney doctor said that I am considered "stable" and not to come back for 6 months. I know you are wanting to know what he said about the meds I was taking, but I didn't tell him, I wanted to wait as I knew he would poo poo me away just as my brother's kidney doctor did. So I have decided to wait the six months and then I will tell him what I have been doing.
I am going to tell you what I am taking because I think that everyone should have this opportunity, if they want it that is. It is a natural, herbal substance from Essential Oils, an herbal company and I was taking something called K & B essential oil. The main ingredient is an oil from Juniper berry bushes as they have been proven to help kidney and bladder function for years and years. Those are the facts and I want you to consider it just that, the facts that have affected myself and my brother. I asked my local pharmacy to take a look at them and see if they would interfere with any of the prescription meds that I am taking and they said no, they wouldn't harm me in any way.
Iam trying to think of any other questions you all my want to ask me and I can't think of anything else. My whole family has PKD, all of my children have PKD, it is a nasty disease and one I have lived with all of my life. I feel as if finally I may have a future without dialysis, but I am not sure of this at all. All I know is that my brother took it with great results and I have taken it with great results. They are drops and taste really bad, but I put them in some juice and drink them every morning. I am telling you all this because I feel that everyone should have this opportunity, if it is the right thing for you. No one really knows that. All I know is they are herbal meds and that they worked for my brother and myself. You can google them yourselves, K & B Essential oils. Too good to be true you say? Maybe so, but it is true.
lots of love,
Norma...
My brother also has PKD and he was preparing for a transplant, his GFR was 10 and his creatinine was just over 8. His wife was going to be his donor, but due to health issues, medicare wasn't very interested in using her at all. So she began a quest to find something that would help her husband. little did she know that what she had found increased his kidney function as well as lower his creatinine level down to 2, all of this in a year and a half,
I couldn't help but be impressed, and I wanted to take whatever my brother was taking as well and I did. In just over 4 months my GFR has increased to 45 previously it was 22. Creatinine level was 2.8, it is now 1.4. My kidney doctor said that I am considered "stable" and not to come back for 6 months. I know you are wanting to know what he said about the meds I was taking, but I didn't tell him, I wanted to wait as I knew he would poo poo me away just as my brother's kidney doctor did. So I have decided to wait the six months and then I will tell him what I have been doing.
I am going to tell you what I am taking because I think that everyone should have this opportunity, if they want it that is. It is a natural, herbal substance from Essential Oils, an herbal company and I was taking something called K & B essential oil. The main ingredient is an oil from Juniper berry bushes as they have been proven to help kidney and bladder function for years and years. Those are the facts and I want you to consider it just that, the facts that have affected myself and my brother. I asked my local pharmacy to take a look at them and see if they would interfere with any of the prescription meds that I am taking and they said no, they wouldn't harm me in any way.
Iam trying to think of any other questions you all my want to ask me and I can't think of anything else. My whole family has PKD, all of my children have PKD, it is a nasty disease and one I have lived with all of my life. I feel as if finally I may have a future without dialysis, but I am not sure of this at all. All I know is that my brother took it with great results and I have taken it with great results. They are drops and taste really bad, but I put them in some juice and drink them every morning. I am telling you all this because I feel that everyone should have this opportunity, if it is the right thing for you. No one really knows that. All I know is they are herbal meds and that they worked for my brother and myself. You can google them yourselves, K & B Essential oils. Too good to be true you say? Maybe so, but it is true.
lots of love,
Norma...
I am seeing my doctor tomorrow, so will print out some of this info, as well as Norma's and her brother's stories, and check with him. At least my doctor is form Poland, so he was trained by someone besides those that are bought out by the big pharmas who influence the med schools here in this country (USA). But mostly I am hopeful for another friend and for my daughter. I am pretty sure that it looks like it won't effect my immunosuppressants, so it would be good to keep my old native kidneys from getting worse, and be able to make it through life without having to have them out. We shall see. Will report in after, but I don't know that he will be doing any cartwheels about this, he is a medical doctor. But I want to go about this correctly.
Blessings all!
Heather
Love to all our old friends
Chewitt
I am very happy you are doing better. Thanks for sharing with us about the Juniper Berry Oil. I took a look at the other ingredients and here is what I found. I too would like more contact info so I can share this with my nephrologist. Have you shown your results to the PKD Foundation? Maybe they can do a clinical study of the Oil? It has a diuretic property like Tolvaptan but at a fraction of the cost. You may have stumbled upon something. One of the other ingredients is royal jelly. I am a beekeeper so I am always interested in anything to do with honey.
by Young Living Essential Oils is enhanced with therapeutic-grade essential oils. Young Living K & B 1.8 oz contains Juniper (Juniperus communis) berry, Parsley (PetRoselinum crispum) leafe, Uva-ursi (Arctostaphylos u.) leaf, Dandelion (Taraxacum officinale) root, German chamomile (Matricaria recutita) Flower, Royal jelly, Geranium (Pelargonium graveolens) aerial parts, Fennel (Foeniculum vulgare) aerial parts, Clove (Syzygium aromaticum) bud, Roman chamomile (Chamaemelum nobile) aerial part, Sage (Salvia officinalis) aerial part, Juniper (Juniperus osteosperma and J. scopulorum) branch / leaf/fruit and vegetable glycerin.Juniper (Juniperus communis) berry, Parsley (PetRoselinum crispum) leafe, Uva-ursi (Arctostaphylos u.) leaf, Dandelion (Taraxacum officinale) root, German chamomile (Matricaria recutita) Flower, Royal jelly, Geranium (Pelargonium graveolens) aerial parts, Fennel (Foeniculum vulgare) aerial parts, Clove (Syzygium aromaticum) bud, Roman chamomile (Chamaemelum nobile) aerial part, Sage (Salvia officinalis) aerial part, Juniper (Juniperus osteosperma and J. scopulorum) branch / leaf/fruit and vegetable glycerin.
Again thank you for sharing your experience with this oil.
All my best-Jessica :-)
www.quackwatch.org/11Ind/young.html
I'm being neither negative nor positive. I just thought some might be interested in what the article has to say. There will always be cynics, of course, and each individual must make his or her own choice, but it's good to have information. Hopefully the sceptics can be proved wrong on this occasion
Chewitt
Be careful.
The last paragraph states:
"Some texts warn that juniper oil may be a kidney irritant, but there is no real evidence that this is the case. Nonetheless, people with serious kidney disease probably shouldn't take juniper. Safety for young children, nursing women, or those with severe liver disease has also not been established."
The question is - what do they consider to be serious kidney disease? Do people with PKD fit into that category? Our disease is very different from other CKDs.
LIsa
Lots of love,
Norma...
Love,
Norma...
Thanks all for your research, and experience. Keep it coming.
Norma...
Norma...
Please know that I am not trying to influence anyone, I am just stating what has worked for my brother and myself and not encouraging anyone else to take a risk that might harm their kidneys. I can't be more clear about that so if you have any notion that I am doing otherwise, please know that I am not. I knew I was taking a risk when I posted this information, but felt that we should all be aware of what could happen if you used these drops. For us, it has been life altering.
Love,
Norma...