Polycystic Kidney Disease (PKD) Support Group
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.
I was just wondering if anyone has calcification on their kidneys? I am not talking about kidney stones. I had a CT Scan because the drs thought that I had kidney stones and they came back and said that I do not have kidney stones, but calcification on my kidneys. The areas are 6mm x 8mm and 6mm x 12mm. Does anyone know anything about calcification and what it is or if there is any concerning things about it? I see my neph next week, so hopefully she will give me some answers, but for now my mind is wandering! It has been a rough year and just seems to be one thing after another.
I have been off work on disability since September because of the constant pain. My kidneys are getting larger very quickly. In December they were 19 and 20 cm. In February they were both 23 cm. I can feel that they are now even larger. It just seems to never end.
This support group is great!! Makes you realize that you are not alone, which is great in itself.
Best of luck to everyone and wishing for pain free days.
I have been off work on disability since September because of the constant pain. My kidneys are getting larger very quickly. In December they were 19 and 20 cm. In February they were both 23 cm. I can feel that they are now even larger. It just seems to never end.
This support group is great!! Makes you realize that you are not alone, which is great in itself.
Best of luck to everyone and wishing for pain free days.
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Is anyone here allergic to Sulfa that is currently taking Diamox? I have been diagnosed with IH now for almost 2 years. I am allergic to Sulfa drugs meaning that my throat will swell up so my Neurologist put me on Topamax. I was suffering from major loud whoosing noises and the topamax helped that but everyday I still hear those mainly between 6 - 12 pm. I am at my wits end and have not went...
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
I do not know if it is the same thing you are talking about.
Mine have absolutely nothing to do with CALCIUM....in fact all my levels are extremely LOW.
I have such an excess of blood from cysts rupture and I also have Alport Syndrome that my kidneys do not filter out all the blood and it clots and calcifies. Causing the same symptoms of kidney stones/ look like kidney stones and causes excruciating pain like kidney stones...except mine are made of PURE BLOOD...not oxalate , phosphorus , calcium, etc.
I know for a fact I have another clot in my right kidney cause I can tell by the pain and the symptoms.
I was told by my neph and urologist that there is not anything that can be done ...
I would love to hear what they tell you...so please post what they have said after you met with your neph.
I truly hope they have an answer for you...
Peace