Hi, Peachybum.

I attended my mother's last appointment with her PD-neurologist three months ago, at which time he had just returned from a big medical conference re: PD held in Paris. The bad news, he said, is that stem-cell research doesn't look as promising anymore as previously thought. The good news, he said, is that there will soon be a variety of new drugs coming onto the market to treat symptoms and with less side-effects. I know it's not the answer you were desiring, but I hope it gives you some comfort...and hope.

I will be joining my parents on my mom's next appt. to the same PD-neurologist on Tuesday and will try to get a bit more info. for you. I'll pass along anything that I find out.

My MD said there will be new drugs ouy next year

I don't know how far along in her diease. YOU go through stages ,but it in some works very slow. SOME fast.My doctor tells me i am in the last stage. I AN IN A WHEELCHAIR,My automice nervous system is not working the way it should. My bowels will not move, kidneys not in control. ann all my degestion track is so messed up. it stays swollen my legs and also my stomach is the same all the way down. Ilook about 6 months pregnant. My doctor also said most likely a heart attack a blood clot Something that has nothing to do with PD will cause death. But he said complations from pd sometimes will happen. THIS IS DEDE MY CP CRASHED AND I CAN NOT GET ON WITH THAT NAME. ALSO YOUR EYES REALLY GET BAD . VISION IS SO BAD I CAN'T SEE CP MUCH. AND I AM SO WEAK I STAY UP LONG ENOUGH TO READ MY EMAILS. iF YOU WANY TO ASK A QUESTION i WILL GET BACK TO YOU AS SOON AS I CAN. dede/ ANGELASHLYN NOW. i WILL BE PRAYING FOR YOUR MOM.

I imagine the emphasis right now will still be in improved drug therapy to control symptoms and perhaps slow the degenerative process, and to improve the drug delivery systems. Stem cells, or variants of these are a long way off -possibly they can lead to an improved dopamine delivery system right into the brain, but without understanding the specifics of the disease process this is difficult!

C

I am attending the HOPE Conference in Seattle, Washington on November 9th. They are suppose to have a lot of information on new research and medicines, etc. for patients and families. I will post what I find out from the conference.

As a follow-up to my 10/22/09 note above, I was unable to follow-up with my mother's PD neurologist about the new drugs coming to market at last week's appointment since we ran out of time, unfortunately.

I did, however, read that advances in gene therapy look promising. Here's a link to one of the articles: http://www.pdtrials.org/en/clinical_research_news/release/pr_1256046932.

HI PEACHY.I THINK FIRST IS A GOOD IDEA TO CALM DOWN.I NOTICED LOAD AND CLEAR WHAT YOU SAID,WHICH WAS NOTHING SPECIFIC.I HEARD WHAT YOU DID NOT SAY EVEN LOUDER.I THINK THIS IS CLEARLY A CRY FOR HELP.WITNESS THE NUMBER OF CHATS OU ARE OPENING.BE AWARE THAT DEPRESION IS PART OF THE CONDITION AND IT IS STILL TREATABLE.
STEWART/ALIVEO

Hi Stewart, im not sure about your answer , although l appreciated it , thanks. I dont suffer from depression im sure of that, l do get rather pissed off that l have pd, but thats okay!

I am a very spur of the moment person, so what i think in an instant i throw it a daily strength for some answers

Peachy, I too, get pissed more than depressed. I understand completely how you feel. I had a "honeymoon" with sinemet recently that seems to be tapering off and the "strangeness" is slowing returning. How unfair! Good news is prayer, nutrition and exercise works better than anything. And no side effects.

I just returned from YOPD conference in Dallas which was amazing and fantastic but they never referred to new medications coming out.

Thank you Schells for completely understanding where im coming from!! :)

Thank you sandharbr3 for the link , l will visit it now!

I do wish some serious money would be thrown towards pd research, here in Australia we it is called the orphan ilness, as everything else seems to get funding. MS , Cancer receiving approximately $35.00 a head for those sufferers, compared to PD $3 per head in the research department,

as most people class it as an old person disease, when its not

angelashlyn , l wish you so much love from me, and i wish the cure more for you than me

Annette, Gene therapy seems to be the leading research here in the US! You can look under pdtrials.org and get some info! A dear friend , another Annette, has a pd friend in the trial at Cornell, that has shown tremendous results, ie. almost dropped all PD meds! Also , lots of young onset PDers are getting great results from DBS, if it's done at the right place! Cheri,cate) in your neck of the woods is a prime example! I've not been here in a bit and don't know your progression , but it's an option in early stages and at young ages! One point about DBS is , it can be taken out if a cure is found! Main thing s keep up the exercise, eat lots of antioxidents and lower your stress level!

Schells , I hate I wasn't able to make Dallas , it would have been great to meet you and many others that attend that I hadn't met before! This economy has me pinching pennies!

tenmike thank u you are always full of so much wisdom and great advice l feel! I feel guilty for leaning on others with the same condition, to expect support, when we all need support , (if that makes sense)

My parkinsons l feel will cripple me, my gait, on the right sid my leg seems to be turning , the muscles are stiff as hell, l keep trying to not focus on it, and l keep trying to make my leg work.

excuse this " fuck it, the damn leg is not working so well"

I dont have the chance to excercise, and im in another dilemma


Excercise or lose it , i have hear

Im thinking about giving up my sedatory job, and undertaking a well shelf stacking job in walmart (for you americans) i figure that will be excercise, but l dont know if i can do it.

I hope that if l decide to do that job, my pd will improve, what do you think

Peacy
I'm trying nasal L glutathione, here's a link to a video
http://www.glutathioneexperts.com/benefits-glutathione.html

I have been dianosed for almost a year and been to five neurologist (one nationally know)

All but one over medicated me, bummer.

But I learned that a good naturopath can work wonders.
TO DATE I'm off Sinamet, Mirapex, requip and now are on only Azilect and Amantadine and want to get off those ASAP

I also feel GREAT

I also take 6 other natural supplements

So there's hope I think
Email me if personally if you want more data

Cheers
Tommy

HI peasohybum I Hi I hae had PD for 4yrs and I take sinemet 8 times a day also mirapex twice a day, I have a lot of downtime when my legs dont work so well,and I was wondering if anyone has gone to Germany for the treatment or ....stem cells... or Spain for the everlasting needle in the ear

Check out my posting of a few minutes ago re: Saturday's webcast re: PD Research Roundtable. I saw one of the two prior webcasts and hope that Saturday's panel speakers will mention new therapies and advanced towards a cure.