I'm 45 living in Australia
I live with episodic paralysis of my limbs, mouth/throat, neck and face. I've spent 16 of the last 17 months getting around in a wheelchair. I live with conversion disorder with paralysis symptoms. I accidentally convert feeling powerless into paralysis. Which of course makes me feel more powerless. I've had conversion disorder with episodic paralysis since I was 19, though it just finally got diagnosed last year.
I'm very very lucky that Australia has brought in National Disability Insurance Scheme. This allows me to have workers visit me daily to help me live as independently as possible. I wish I could share this with everyone desperately needing this care too.
I'm currently unable to weight bear and my arms get very tired quickly. My speech comes and goes most days as my mouth works or doesn't.
I'm waiting for Disability housing. I'm in a split level unit or condo now. I've got a wheelchair ramp out back into my garage but I can't leave the garage alone- my driveway is too steep. I live in two bedrooms, a small toilet room, a bathroom and a laundry, with a small space joining all these rooms upstairs. I can't get downstairs at all to my kitchen, art studio, lounge room or dining room, or to my front door. One day I'll be moved into a fully wheelchair accessible place I can access all rooms in.
I'll walk again at some point, but it's unknown when or how long for.
I like to go sit in my wheelchair on my ramp out back and feed the local birds. I feed crows, currawongs, Indian mynas, Crimson rosellas, a turtle dove and two crested pigeons regularly. Sometimes cockatoos too. One crow is really brave and isn't scared of me. The turtle dove has naps on the ramp laying down on it. The birds give me a lot of joy.
I've got a cat I really enjoy. She's sleeping on my lap now.
I have my child stay with me 1/2 of holidays and about every 4th weekend. I wish it were more. I Love that time being a mom, even though they do get a lot of screen time when they are here.
Last Thursday I went in person with a worker to see my psychologist. Usually I just talk with him on the phone for sessions. It was my first time beyond my ramp for well over a month. I find my thinking adjusts to think just within my walls and back garden when I stay inside a long time. Does anyone else find this?
Please tell me about you. Which country are you in? What sort of paralysis do you live with? What gives you joy? What contact do you have with other people? What is life like or you?