I'm so sorry it's taken so long for a response. I used to come on here more often, but it doesn't seem like there is anyone on lately, I just don't check often.
I had an aggressive form of large b cell lymphoma, but not follicular. The difference being that my type of cancer was curable. From everything I know, follicular is not. It goes into remission, but ultimately comes back. But it's very slow growing, so if they don't want to do anything right now, that is good.
I can relate to the feeling that something is hanging over you. Even after I went into remission, I always felt like it was always right around the corner, ready to come back. I had 3 breakdowns due to that.
Cancer is traumatic, whether it's "curable" or "slow growing". It's still right there with you. It took me time, a long time to get over my issues with it. You were just diagnosed, and it will take you time also. But we can be resilient. Just listen to your doctors and take care of yourself.

New to this site. I was diagnosed with NHL when I was 30. Mine was aggressive so there was no waiting. To this day I remember knowing I had it before they told me and I remember the day they confirmed and my life turned upside down. I cried, wanted to curl up and shut out the world. But then I looked at myself and said get your shit together and stop being so dramatic. Life has dealt you something awful but I'm alive, I have my family and I will fight the whole way. I knew there was no other choice. Don't let it run your life. Take control and make sure you get the best care you can find and challenge your doctors / get 2nd opinions-- it's okay. (I felt bad when I did it but it turned out to be the best thing as it lead to an immed CT). Stay strong, and find the joy in the little things. You will have tough days -- wondering if/when -- acknowledge but don't let them take over. Best to you

Hello-
I am trying to be more active on this site as I know it can and is very helpful. I was diagnosed with NHL large diffuse B-cell in 2014 and thankfully have been in remission since that summer so almost 3 years. Mine is a little different as it was caused by my anti-rejection medication from my liver transplant when I was little.

It is not easy even in remission not having that feeling that something is hanging over your head. I was told me remission would only last prob 5 years so as that comes closer it gets more scary. I try to just live everyday to the fullest and I tend to live appointment to appointment right now. I have a follow-up coming in May so I tend to worry a little more when that comes close.

I just let myself have the moment of fear or sadness for a day then just pick myself up and say that yes there is always the chance cancer will come back but I am choosing to live and not let it win by controlling my everyday. If it comes back I will fight like I did the first time but until then this is my life to live and find activities such as exercise and crafting to channel that energy. Best of luck to you:)

Hello. It looks like it has been over a year since your dx. I hope that you are doing well. I have fNHL as well. I went for five years before it transformed into Large B cell and I had to do the chemo thing. I finished 6 rounds in Oct. 2017. I had a PET Scan a couple of weeks ago and everything is still good. I still have fNHL as it is not curable and am hoping to get a few good years before I have to face another transformation. I think of my cancer as the silent passenger. I don't think the thought of cancer ever really leaves your reality but it is possible to live a full life each day and not let cancer rule your life. Cancer reminds us to live each day to its fullest.
I hope that you have a really long time before you need treatment. Quite frankly, many people don't ever need treatment. Talk to your doc about the FLIPI chart to see what your risk factors are. Good luck and I hope that you are doing well.

Hi
I was just diagnosed in January with a biopsy. My next scans are in July.
It is a wait and see situation for me and I don't like it.
Yours was in 2017 may I ask how it is going for you?
I try to look at life as a real gift now but it is hard. It is never out of my thoughts.
Thanks for listening. Any response from anyone who eventually got symptoms and needed treatment would be great. I am tired all the time but nothing else yet. Makes me nervous. Also if chemo was the only treatment anyone received.
Thanks
Pat

Citygal. I’m going to send you a friends request. NHL for 5 years and only got away from doing chemo for 14 months before it came back. Struggling with depression and self esteem. Maybe we can help each other as there are very few active members in this group. Strength and prayers. Lynette

I'm always here looking to see if new people have joined, or if something pops up. I've been in remission for a long time, but I really went through it in treatment. I'm around if anyone wants to talk. It's so slow I sometimes only check in every 2-3 days, but I am around.

I was diagnosed with Stage IV Follicular NHL and DFLBC lymphoma in December 2017. I did one round of RCHOP in Feb 2018 and quit. It was too hard on me. I have been in remission for both NHLs since 2020. I am so grateful but it hasn't been as easy as it sounds. Joined the group to give support to those who request it. Prayers for everyone's health and healing.