Narcolepsy Support Group
A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.
xyremhappy
Please make sure that your health is good and that all other vitamins are not depleated. I was told I had Narcolepsy, but years later it was just a lack of B-12. My other meds where depleating my b-12.
arfie
Little things can make great differences. Glad you found yours. I am thrilled for you! Way to go!
deleted_user
Thanks for your caution. It is important that the diagnosis be made by a doctor who knows something about narcolepsy. It is standard practice for all other more common reason for fatigue snd/or muscle weakness to be ruled out, including vitamin deficiencies, blood disorders, thyroid concerns, depression, diabetes, sleep apnea and RLS, TIA, MS, Epilepsy, etc before a complete diagnostic sleep study is even recommended. There are very specific diagnostic criteria for the diagnosis of narcolepsy. Of course any of these or other concerns might occur along with narcolepsy. Most doctors have a limited understanding of narcolepsy...If they don't know the latest protocols they need to refer to a doc who does. Many people who actually have narcolepsy do report that increasing their B12 does help with their fatigue.
deleted_user
Yes B12 deficiency can cause severe tiredness like chronic fatigue syndrome, this is why a sleep study should be done for narcolepsy to actually see what the brain is doing and have a correct diagnosis.
AgentSmith
I was diagnosed with Hypersomnia (not Narcolepsy) during a sleep study. I also had a vitamin D deficiency and very low B12 (but not technically deficient at the time). I was hoping that would be my problem but have gotten both to a good level now and am still tired all the time. I still have no idea what caused them both to be low. I did every test known to man and everything was normal.
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