Now that you say it, I don't have a friend with narcolepsy either. That isn't what bothers me though. It bothers me that no one understands or takes the time. They really do think its in our head. (no pun intended)

The receptionist at my doctors has narc. She has EDS, automatic behavior, and has the paralized thing. I have EDS, cataplexy, hallucinations, the opposite things to her so still unable to swap notes.

What I would give to meet someone who KNEW what N was!! I've never met anyone who was like, "Oh, right - narcolepsy, yeah I've heard of that." I actually have pamphlets in my purse from my dr's office explaining what it is so I can just give them out instead of having to explain it everytime.

Erin
Alberta, Canada

Yeah, I keep pamplets too! Last time I was at my doctor's office, they were out of them... probably because I took most of them. But not all... so, there must be more narcoleptics in my city. HMMMM...

I wonder if I'm the only parent who has a child who gets it.

I just got back from another sleep appt. I was curious about how many Narc's there really are in my part of the country. My dr said he has about 40 patients, and that there are about 100 in Alberta.
So in a province of over 3.5 million people - only 1 in 35,000 people have N. (not counting the unfortunate undiagnosed)
So much for hoping to casually run into another narc!

Khorsley - I don't know how old your baby is, but mine is 4 (5 in a few weeks) and it's always been "normal" for mommy to fall asleep doing weird things (walking, talking, eating) and I still wake up with his little hands on my cheeks and his forehead pressed against mine and he reminds me, "mommy, it's not nap time - see? the sun is up - it's time to wake up"
Most of the time I think he's the only one who can take N in stride and accepts it as a normal part of life. Too bad we can't bottle that kind of tolerance for everything that's "different" and feed it to the rest of the world.

Erin

my son is 23 .His name is aaron.