Myelodysplasia Support Group
The myelodysplastic syndromes (formerly known as "preleukemia") are a diverse collection of haematological conditions united by ineffective production of blood cells and varying risks of transformation to acute myelogenous leukemia. Anemia requiring chronic blood transfusion is frequently present. Although not a true malignant neoplasm, MDS is nevertheless classified...
This one is for all the caregivers on the forums! please come join us here even if you are not a caregiver you are welcome!
I know at times all I do is sit and cry and feel that no one understands. WE ARE NOT ALONE!
I know at times all I do is sit and cry and feel that no one understands. WE ARE NOT ALONE!
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
Cat
she was diagnosed in 2007 . well let me give you her history. she is 75
she has 8 living children . i am the youngest.she has insulin diabetes ,she had a pulmonary embolism .in 2000 that nearly took her life. she has had stage 4 melonoma tumor in her big toe. she is extremely overweight(snuggly laps are great) when you have 36 grands 31great grands.i began taking care of her she was on procrit, .b-12, benedryl to sleep and durring the transfusions.and potassium 80mg water pill and about 20 other drugs.she was getting worse. tired all the time . the doctors said what changed in your life cause she was doing great and one day bam it came like that and quick.i began analyzing her. she was having coffee ground feces. alot and i looked into that well benedryl causes internal bleeding in upper GI .WHEN MIXED WITH OTHER MEDS IN SENIORS.check drugs.com
so valarium root to sleep . well that slowed the coffee grounds except when she had a transfusioni didnt know that was the cause i was guessing and trying ok first of all i should say i have an 8th grade education so everything i know . is do GOD research and the love of my mom.ok long story short doctors nurses said i needed to except she was dieing nope i need her a little longer.she was transfusion dependent (every 2-3 weeks) platelets were 17 and dropping ..she was sick alot i discovered SPLENDA(SUCRALOSE) was another killer people wake up its in everything sugar free . and about the time it got popular our parents began getting sicker and sicker.and dieing bloated stomach pain research it. ok than i said no more benadryl when transfusing there are other antihistamines peolpe. i gave her milk thistle ,for platelets, i gave her astragalus to build blood .elderberry extract no more colds no more flu again have we had. and i have a 6 year old and they have been together daily sharing everything.best friends. i begged her to quick procrit she did . yeah yeah she really had to trust me alot.what could she lose the doctors said your dieing.no more ta[p water see almost every city has flouride great for kids deadly to imune depressed people. anway today she is called a walking miracle yes she still has diabetes . a big lap. edema high blood pressure ,but her platelets are 87. her reds are normal and she is alive and we are going to not die do to MDS. BECAUSE WE ARE BLESSED and poor yes .
julia